We’ve taken the Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Guide to Managing Your HHT. We are extremely proud to be able to provide this booklet to our HHT community. This publication represents your dollars at work and our commitment to our mission – improving the lives and wellbeing of individuals and families affected by HHT!
Many of you may have already received a copy of the publication in the mail. If you do not receive a copy in the coming weeks, you may not have provided us with your contact information previously. Please click here to update your information and preferences.