Filter Test Search Search Resources Resouce Type All TypesArticleBrochureEspañolFact SheetFundraisingGovernmentGuidelinesNewsletterOrganizationPatient ToolPolicy StatementProvider ToolScientific LiteratureVideoWebinar Patient Topics All TopicsAnemia/ Iron DeficiencyBrainCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceLiverLungsMental HealthNewly DiagnosedNosebleedsPregnancy & Women’s IssuesSkinUseful Links to Outside Organizations Provider Topics All TopicsAnemia/ Iron DeficiencyBrainHHT Continuing EducationClinicians First Time Seeing a Patient with HHTCOVID-19Drug TherapyGastrointestinalGeneticsHeartHHT in childrenInsuranceInternational Guidelines for Screening and TreatmentLiverLungsNosebleeds or EpistaxisPregnancy & Women's IssuesScientific NewsletterSkinUseful Links to Outside Organizations Title Year Type Description Topic(s) 20-year Follow-Up Study of Danish HHT Patients – Survival and Causes of Death 2016 Scientific Literature Orphanet Journal of Rare Diseases. Authors: Anette Kjeldsen, Katrine Saldern Aag… Patient Topics: Newly Diagnosed Hemorrhage Rates from Brain Arteriovenous Malformation in Patients with HHT 2015 Scientific Literature Stroke. Authors: Helen Kim, Jeffrey Nelson, Timo Krings, Karel G. terBrugge, Cha… Patient Topics: Brain Provider Topics: Brain Cost Savings through Molecular Diagnosis for HHT 2012 Scientific Literature Genetics in Medicine. Authors: Barbara A. Bernhardt, Cara Zayac, Scott O. Trerot… Provider Topics: Genetics Long-Term Outcome in a Patient with Pulmonary Hypertension and HHT 2007 Scientific Literature CHEST. Authors: Omar A. Minai, Christina Rigelsky, Charis Eng, Alejandro C. Arro… Patient Topics: Lungs Provider Topics: Lungs Genetic Testing for HHT 2012 Scientific Literature JCOM. Author: Barbara A. Bernhardt, MS, CGC. This article is available for publi… Patient Topics: Genetics Provider Topics: Genetics Future Treatments for Hereditary Hemorrhagic Telangiectasia 2020 Scientific Literature Orphanet Journal of Rare Diseases. Authors: Florian Robert, Agnès Desroches-Cast… Provider Topics: Drug Therapy JAMA Clinical Challenge – Red Papules on the Tongue of a Patient with Hemiparesis 2014 Scientific Literature JAMA. Authors: Hsien-Yi Chiu, MD and Sung-Jan Lin, MD, PhD. This article can be… Patient Topics: Skin Provider Topics: Skin PubMed – US National Library of Medicine National, NIH 2020 Organization, Scientific Literature PubMed – NIH National Library of Medicine: National Center for Biotechnology Inf… Patient Topics: Useful Links to Outside Organizations Provider Topics: Useful Links to Outside Organizations Long-Term Therapy with Bevacizumab in HHT 2011 Scientific Literature The New England Journal of Medicine. Authors: Brian T. Brinkerhoff, David M. Poe… Patient Topics: Anemia/ Iron Deficiency, Gastrointestinal, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Gastrointestinal, Nosebleeds or Epistaxis Improved Survival Outcomes in Cancer Patients with HHT 2014 Scientific Literature Cancer Epidemiol Biomarkers & Prevention (American Association for Cancer Resear… HHT: A Clinical and Scientific Review 2009 Scientific Literature European Journal of Human Genetics. Authors: Fatima S. Govani and Claire L Shovl… Patient Topics: Genetics Provider Topics: Genetics Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights 2017 Scientific Literature Author: Veronique M.M. Vorselaars. This article is available for public use and… Patient Topics: Heart, Liver, Lungs Provider Topics: Heart, Liver, Lungs Systemic bevacizumab for the treatment of chronic bleeding in HHT 2018 Scientific Literature Journal of Internal Medicine. Authors: Al-Samkari, H., Kritharis, A., Rodriguez-… Patient Topics: Anemia/ Iron Deficiency, Drug Therapy, Gastrointestinal, Nosebleeds Provider Topics: Anemia/ Iron Deficiency, Drug Therapy, Gastrointestinal, Nosebleeds or Epistaxis Bevacizumab Reverses Need for Liver Transplantation in HHT 2008 Scientific Literature Liver Transplantation. Authors: Andrew Mitchell, Leon A. Adams, Gerry MacQuillan… Patient Topics: Heart, Liver Provider Topics: Heart, Liver Vitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia 2018 Scientific Literature A retrospective chart review of 198 patients was performed to explore the relati… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis Feraheme: Prescribing Information 2015 Scientific Literature AMAG Pharmaceuticals, Inc. This article is available for public use and does not… Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency Topical Timolol for the Treatment of Epistaxis in HHT 2014 Scientific Literature American Journal of Otolaryngology. Author: Scott E. Olitsky, MD. This article i… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis Optimal Management of HHT 2014 Scientific Literature Journal of Blood Medicine. Authors: Neetika Garg, Monica Khunger, Arjun Gupta, a… Patient Topics: Newly Diagnosed Provider Topics: Clinicians First Time Seeing a Patient with HHT Prevalence and predictors of anemia in HHT 2017 Scientific Literature American Journal of Hematology. Authors: Kasthuri, RS, Montifar, M., Nelson, J.,… Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency The Young’s Procedure for Severe Epistaxis from HHT 2012 Scientific Literature American Journal of Rhinology & Allergy. Authors: Sara L. Richer, M.D., Urban W.… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis HHT: Diagnosis and Management from the Hematologist’s Perspective 2018 Scientific Literature This review discusses the biology of HHT, management issues that face the practi… Patient Topics: Anemia/ Iron Deficiency Provider Topics: Anemia/ Iron Deficiency Detecting HHT: Dental Hygienists can improve health outcomes by recognizing the first symptoms of this genetic disorder 2010 Scientific Literature Dimensions of Dental Hygiene. Author: Sherri M. Lukes, RDH, MS, FAADH. This arti… Provider Topics: Clinicians First Time Seeing a Patient with HHT Brain Vascular Malformation Consortium: Overview, Progress, and Future Directions 2013 Scientific Literature Semantic Scholar. Authors: Amy Akers, Karen Le Ball, Marianne S. Clancy, Anne M… Patient Topics: Brain Provider Topics: Brain Hemorrhage-Adjusted Iron Requirements, Hematinics and Hepcidin Define HHT as a Model of Hemorrhagic Iron Deficiency 2013 Scientific Literature PLOS One. Authors: Helen Finnamore, James Le Couteur, Mary Hickson, Mark Busbrid… Provider Topics: Anemia/ Iron Deficiency The Pulmonary Vascular Complications of Hereditary Hemorrhagic Telangiectasia 2009 Scientific Literature The European Respiratory Journal. Authors: M. E. Faughnan, J. T. Granton, and L.… Patient Topics: Lungs Provider Topics: Lungs Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population 2018 Scientific Literature The Journal of Pediatrics. Authors: Kristy S. Pahl, Arkopal Choudhury, Katie Wus… Patient Topics: HHT in children Provider Topics: HHT in children ABSTRACT: Effect of Topical Intranasal Therapy on Epistaxis Frequency in Patients with HHT. A Randomized Clinical Trial. 2016 Scientific Literature JAMA. This article is available for public use and does not require purchase. Cl… Patient Topics: Nosebleeds Provider Topics: Nosebleeds or Epistaxis Bevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia 2020 Scientific Literature PLoS One. Authors: Carolina Vázquez, María Laura Gonzalez, Augusto Ferraris, Jua… Patient Topics: Anemia/ Iron Deficiency, Drug Therapy, Liver Provider Topics: Anemia/ Iron Deficiency, Drug Therapy, Liver Executive Summary – 11th HHT International Scientific Conference (2015) 2015 Scientific Literature Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christop… Patient Topics: Anemia/ Iron Deficiency, Brain, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Heart, Insurance, Liver, Lungs, Mental Health, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin Provider Topics: Anemia/ Iron Deficiency, Brain, Clinicians First Time Seeing a Patient with HHT, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Heart, Insurance, Liver, Lungs, Nosebleeds or Epistaxis, Pregnancy & Women's Issues, Skin MedlinePlus – US National Library of Medicine National, NIH 2020 Organization, Scientific Literature MedlinePlus – U.S. National Library of Medicine: an online health information re… Patient Topics: Useful Links to Outside Organizations Provider Topics: Useful Links to Outside Organizations Previous Next
