What the HHT?

A blog for the HHT community

Front Page Announcements

CDC Features HHT in Popular Webinar Series

One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how frustrating this can be. That’s why we continue to make physician education a priority. For years, Cure HHT has attempted to get on the Centers…

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UltraTri for HHT

Dr. Anthony Anzell, Cure HHT’s newest recipient of the Compassionate Champion award, Board Member, Researcher and HHT patient is gearing up for another one of his, as he likes to call it, “Crazy Events.”  Anthony and five of his friends, have created their bigger version of the Ironman competition with an Ultra-Tri, taking place August…

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Barrow Neurological Institute named new HHT Center of Excellence

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of training, mentor center communications and a site visit from Cure HHT’s Center of Excellence (COE) Committee, Barrow Neurological Institute is named the 30th HHT CoE in North…

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New HHT-HTC Treatment Centers

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine Hemophilia and Coagulation Disorders Program, as well as the Indiana Hemophilia & Thrombosis Center, Hemophilia Treatment Center (HTCs) are now operational and accepting new HHT patients! Thanks to a new program proposed by Cure HHT and funded by the CDC, Cure…

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