Cure HHT Takes on Capitol Hill

This month, our group of Cure HHT staff, patient advocates, physicians and researchers descended upon Capitol Hill with the mission of shedding light on the importance of protecting and expanding federal funding for HHT. In all, we had 35 appointments with congressional and senatorial office members and staff – including a meeting with Senator Susan Collins. Our advocacy efforts wrapped up with a Congressional Briefing from inside the Capitol Building, where we presented on the impact federal funding can have in changing the trajectory of this disease.

If you couldn’t be with us in Washington, just remember there are many meaningful ways you can still support our advocacy work. It’s going to take all of us to get loud for HHT to ensure we continue to grow federal support. In the two short years since we finally secured federal funding for our centers, we have grown the number of patients seen at centers of excellence by 43%!