What the HHT?

A blog for the HHT community

Front Page Announcements

My HHT Tracker App – Download Now!

Make 2019 the year you take charge of your HHT!  Improve your health and understanding of the disease with “My HHT Tracker” now available globally on iOS. The free app allows you to privately track your health daily, store your data, organize medical tests, track nosebleeds — and only share your information with your health…

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Comprehensive HHT Resource: Living with HHT Book

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…

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HHT International Scientific Conference

On behalf of the Organizing Committee, we would like to invite you to join us in Rio Grande, Puerto Rico for the 13th HHT International Scientific Conference. We will host a Welcome Reception on June 12th and scientific sessions on June 13-16, 2019. The 2019 meeting will bring together the world’s leading HHT experts in both basic research as well…

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Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

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It’s CFC Campaign Season

Are you employed by the Federal Government? If you are a Federal civilian, postal or military employee you can donate to Cure HHT through the Combined Federal Campaign (CFC). The CFC campaign season runs through January 11, 2019. Cure HHT – CFC #10233 DONATE to Cure HHT >

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