What the HHT?

A blog for the HHT community

Front Page Announcements

Comprehensive HHT Resource: Living with HHT Book

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…

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Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

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HHT Recognized in WebMD Article!

WebMD has highlighted HHT in an article titled “What Does Your Nose Say About Your Health?“. This recognition by one of the top healthcare websites shows the effectiveness of the our community’s efforts to spread awareness and educate about HHT. With your help we continue to show the world that HHT is more than just…

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Cure HHT Helps Raise Awareness for Pulmonary Hypertension

Did you know that people living with HHT are at risk of developing Pulmonary Hypertension (PH)?  Cure HHT has partnered with the Pulmonary Hypertension Association (PHA) to raise awareness about the connection of these two diseases. To learn more about how HHT and PH are connected, check out our HHT and PH resources in the Cure…

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My HHT Tracker iOS App is Ready to Download!

My HHT Tracker: An iOS App To Help You Manage Your HHT Cure HHT is excited to announce that the iOS App My HHT Tracker is ready to download for all North American HHT patients!     My HHT Tracker is a 21st century tool that allows patients to educate themselves about HHT, track health conditions, store health…

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