What the HHT?
A blog for the HHT community
WebMD has highlighted HHT in an article titled “What Does Your Nose Say About Your Health?“. This recognition by one of the top healthcare websites shows the effectiveness of the our community’s efforts to spread awareness and educate about HHT. With your help we continue to show the world that HHT is more than just…Read More
Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45 News Baltimore and Cure HHT’s Executive Director, Marianne Clancy, as she talks about HHT and HHT Awareness Month. News Clip >Read More
Check out the Cure HHT Spring Newsletter 2018 Volume 2. This issue includes a publication in The Journal of Pediatrics on the Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population, an update on HHT research, HHT Awareness month activities, new education materials and resources for genetic testing and much more.…Read More
Living With HHT Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia Paperback, 200 pages Sara Palmer, PhD and Johns Hopkins University Press announce the first comprehensive book on HHT, released in December 2017. Sara addresses how HHT patients can maintain their own emotional health, help other family members including children, partners and parents, and live life as fully as…Read More