What the HHT?
A blog for the HHT community
Front Page Announcements
9th Annual Stoner Open to Benefit Cure HHT
When: Sunday, June 3, 2018 from 11:00 am-8:00pm EST Where: Hideaway Hill Golf Club: Kresgeville, PA Details: Join the Stoner family for the 9th Annual Stoner Open, a golf tournament to raise money and awareness for HHT. Registration includes 18 holes of golf, prizes, awards, beverages throughout the day, lunch, dinner and a tournament t-shirt! Individual entries, foursomes…
Read MoreWhy Was This Teenager Bleeding So Excessively?
The New York Times Magazine | 2018
Read MoreThe First Comprehensive Book on “Living with HHT”
Living With HHT Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia Paperback, 200 pages Sara Palmer, PhD and Johns Hopkins University Press announce the first comprehensive book on HHT, released in December 2017. Sara addresses how HHT patients can maintain their own emotional health, help other family members including children, partners and parents, and live life as fully as…
Read MoreJoin the 50 State Challenge Today! #50States4HHT
Are You Ready for a Challenge?
Right now, there is no cure for HHT.
We believe that finding a cure is possible in this lifetime.
And we need your help.
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Hot Off the Press – Angiogenesis Publication!
We are excited to announce the publication of the HHT Scientific Conference Executive Summary and Abstracts in Angiogenesis. This publication is a critical resource for HHT patients, physicians and scientists. Click on the links below to review the online publications for the HHT International Scientific Conference. Executive Summary Conference Abstracts The 12th HHT International Scientific…
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