What the HHT?
A blog for the HHT community
The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical decisions related to HHT diagnosis, screening, treatment and overall patient care management. These guidelines are used to set the standard of care to be used internationally for the diagnosis and treatment of HHT. Here you will find the most up-to-date…Read More
The PATH Study is exploring the use of an oral medication called pomalidomide for the treatment of nosebleeds in HHT at 11 research centers across the United States. Find centers and check your eligibility.Read More
Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to meet Lindsay or hear her speak, you’d undoubtedly have a hard time forgetting her infectious smile and positive attitude. After being diagnosed with HHT and undergoing a 14 hour surgery to remove a brain AVM in 2017, Lindsay has continued…Read More
Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT induced anemia and iron deficiency. With anemia affecting 50% of people diagnosed with HHT, and many not even aware that they have anemia. Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, as he addresses many…Read More
Up Close and Personal with Christopher Hughes, PhD – Cure HHT’s 2020 Robert E. Berkman Leadership Award Recipient by Phyllis Loveland In recognition of Robert E. Berkman’s exemplary leadership, we honor his legacy through the creation of the Robert E. Berkman Leadership Award, to recognize those members of the Cure HHT Community who exhibit the…Read More