What the HHT?

A blog for the HHT community

Front Page Announcements

Patient & Physician Conference – Washington (Postponed)

Hyatt Regency – Bellevue, Washington **POSTPONED** Join us at our Patient & Physician conference in Washington for a unique education experience in the near future! This conference has been postponed from May 2020 due to health concerns related to COVID-19. Check back soon for updates on new dates and open registration.

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HHT in the News: “World Rare Diseases Day: Three people on how their unusual conditions affect their lives” (Article 3)

MacGinty, Michael - Irish Times

February 27, 20202 | Irish Times | by Sylvia Thompson – “Michael MacGinty from Letterkenny, Co Donegal, says that watching family members having serious unexplained nose bleeds has been part of his life for as long as he can remember. “My earliest memories are of my grandmother constantly clutching a handkerchief that was blood-stained. My…

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