What the HHT?

A blog for the HHT community

Front Page Announcements

Spring Newsletter 2018

Check out the Cure HHT Spring Newsletter 2018 Volume 2. This issue includes a publication in The Journal of Pediatrics on the Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population, an update on HHT research, HHT Awareness month activities, new education materials and resources for genetic testing and much more.…

Read More

The First Comprehensive Book on “Living with HHT”

Living With HHT Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia Paperback, 200 pages   Sara Palmer, PhD and Johns Hopkins University Press announce the first comprehensive book on HHT, released in December 2017. Sara addresses how HHT patients can maintain their own emotional health, help other family members including children, partners and parents, and live life as fully as…

Read More

Angiogenesis Publication!

We are excited to announce the publication of the HHT Scientific Conference Executive Summary and Abstracts in Angiogenesis. This publication is a critical resource for HHT patients, physicians and scientists. Click on the links below to review the online publications for the HHT International Scientific Conference. Executive Summary Conference Abstracts The 12th HHT International Scientific…

Read More

Make Cure HHT Your Charity of Choice for CFC

Active & Retired Federal Employees and Military Personnel, when you choose us as your charity of choice for the Combined Federal Campaign, you’re helping to make a difference in the fight against HHT. Cure HHT is the only patient advocacy organization focused solely on HHT patient and their families. We will always stand with you,…

Read More