What the HHT?

A blog for the HHT community

Front Page Announcements

30 Years Strong Highlights

With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few of the many successes that donors like you have made possible! Together, we have built an amazing foundation – expanding expert clinical access, funding research,…

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Nuts and Bolts of a Clinical Trial – PATH-HHT Study (Recorded)

Nuts and Bolts of a Clinical Trial PATH-HHT Study Dr. Vivek Iyer, Director of the HHT Center of Excellence at Mayo Clinic and local site Principal Investigator for PATH-HHT Study, and Dr. Keith McCrae, Principal Investigator overseeing the PATH-HHT Study at the Cleveland Clinic HHT Center of Excellence introduce the audience to clinical trials, including…

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Meta: Accelerating Research on Rare Diseases

March 19, 2021 | Meta | By Jennifer L. Minnick “At a recent workshop about Meta, Executive Director of Cure HHT Marianne Clancy noticed a new scientific paper about the rare disease she’s focused on curing — in the form of a case report from Sudan. Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder that causes…

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Lift Your Heart for HHT Celebration Kickoff!

Help our rare disease mascot flight! February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Lift Your Heart for HHT tribute celebration from February 22 through February 28 (Rare Disease Day®), for each donation made, we’ll honor your loved ones who are either affected by HHT…

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Women in Science Day 2021 – International

“HHT Ireland reminds us that women and girls play a critical role in science and technology communities and that their participation should be strengthened.” HHT Ireland talks to Petronella McLoughlin, an HHT patient who is a Senior Finite Scheduler with MSD Biotech, Dublin. McLoughlin notes: “It is exciting to be among those who influence therapeutical…

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