What the HHT?
A blog for the HHT community
Front Page Announcements
Cure HHT Spring 2021 Newsletter: Now Available!
Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as a pdf or Flipbook.
Read MoreNew HHT-HTC Treatment Centers
Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine Hemophilia and Coagulation Disorders Program, as well as the Indiana Hemophilia & Thrombosis Center, Hemophilia Treatment Center (HTCs) are now operational and accepting new HHT patients! Thanks to a new program proposed by Cure HHT and funded by the CDC, Cure…
Read MoreSpotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast
Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full episode on Wednesday 6/23, HHT Awareness Day! This FREE podcast will be available through the Biorasi website and on all major podcast streaming platforms including…
Read More30 Years Strong Highlights
With your support, Cure HHT has accomplished so much, and the best is yet to come! As we launch our 30th Anniversary Year, we look back at just a few of the many successes that donors like you have made possible! Together, we have built an amazing foundation – expanding expert clinical access, funding research,…
Read MoreNuts and Bolts of a Clinical Trial – PATH-HHT Study (Recorded)
Nuts and Bolts of a Clinical Trial PATH-HHT Study Dr. Vivek Iyer, Director of the HHT Center of Excellence at Mayo Clinic and local site Principal Investigator for PATH-HHT Study, and Dr. Keith McCrae, Principal Investigator overseeing the PATH-HHT Study at the Cleveland Clinic HHT Center of Excellence introduce the audience to clinical trials, including…
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