What the HHT?
A blog for the HHT community
Front Page Announcements
Shop for a cause. Shop for a cure. Shop Cure HHT!
Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in time for the holidays! Shop from an assortment of items including t-shirts, notepads and masks. And the best part, 100% of the proceeds go to…
Read MoreInternational HHT Guidelines: Brain Vascular Malformations (VMs) (Recorded)
International HHT Guidelines Online Education Series Topic: Brain Vascular Malformations (VMs) Tue., September 21 | 7:00 p.m. (ET) Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she discusses Brain Vascular Malformations (VMs) as they relate to HHT. Dr. Faughnan is a renowned HHT specialist and will walk the audience through a comprehensive…
Read MorePhysician Webinar: The Role of Liver Imaging in HHT (Recorded)
Liver involvement occurs in approximately 75% of people with HHT. While many people are asymptomatic, the complications associated with liver involvement have historically been under diagnosed. These complications include arterioportal shunting leading to portal hypertension and arteriosystemic shunting leading to high output cardiac failure (HOCF). HOCF occurs much more frequently than has previously been considered.…
Read MoreWFMZ-TV 69 News reports on HHT-HTC Openings
There’s nothing we relish more than seeing news coverage about HHT. We were so excited to have WFMZ-TV Channel 69 report on our two newest HHT-HTC Treatment Centers that opened in Indiana and Michigan! Not only did the reporting share the good news about access to care but gave an overview of HHT and its…
Read MoreCDC Features HHT in Popular Webinar Series
One of the biggest challenges facing HHT patients continues to be the lack of HHT knowledge amongst healthcare providers not affiliated with an HHT Center of Excellence. We understand how frustrating this can be. That’s why we continue to make physician education a priority. For years, Cure HHT has attempted to get on the Centers…
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