What the HHT?

A blog for the HHT community

Front Page Announcements

Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

Read More

Cure HHT Helps Raise Awareness for Pulmonary Hypertension

Did you know that people living with HHT are at risk of developing Pulmonary Hypertension (PH)?  Cure HHT has partnered with the Pulmonary Hypertension Association (PHA) to raise awareness about the connection of these two diseases. To learn more about how HHT and PH are connected, check out our HHT and PH resources in the Cure…

Read More

My HHT Tracker iOS App is Ready to Download!

My HHT Tracker: An iOS App To Help You Manage Your HHT Cure HHT is excited to announce that the iOS App My HHT Tracker is ready to download for all North American HHT patients!     My HHT Tracker is a 21st century tool that allows patients to educate themselves about HHT, track health conditions, store health…

Read More

HHT Recognized in WebMD Article!

Girl Bloody Nose Tissue

WebMD has highlighted HHT in an article titled “What Does Your Nose Say About Your Health?“. This recognition by one of the top healthcare websites shows the effectiveness of the our community’s efforts to spread awareness and educate about HHT. With your help we continue to show the world that HHT is more than just…

Read More

Angiogenesis Publication!

We are excited to announce the publication of the HHT Scientific Conference Executive Summary and Abstracts in Angiogenesis. This publication is a critical resource for HHT patients, physicians and scientists. Click on the links below to review the online publications for the HHT International Scientific Conference. Executive Summary Conference Abstracts The 12th HHT International Scientific…

Read More