What the HHT?
A blog for the HHT community
Front Page Announcements
UltraTri for HHT
Dr. Anthony Anzell, Cure HHT’s newest recipient of the Compassionate Champion award, Board Member, Researcher and HHT patient is gearing up for another one of his, as he likes to call it, “Crazy Events.” Anthony and five of his friends, have created their bigger version of the Ironman competition with an Ultra-Tri, taking place August…
Read MoreBarrow Neurological Institute named new HHT Center of Excellence
Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive evaluation, treatment, and education to individuals with HHT and their families. After 18 months of training, mentor center communications and a site visit from Cure HHT’s Center of Excellence (COE) Committee, Barrow Neurological Institute is named the 30th HHT CoE in North…
Read MoreCure HHT Spring 2021 Newsletter: Now Available!
Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as a pdf or Flipbook.
Read MoreNew HHT-HTC Treatment Centers
Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine Hemophilia and Coagulation Disorders Program, as well as the Indiana Hemophilia & Thrombosis Center, Hemophilia Treatment Center (HTCs) are now operational and accepting new HHT patients! Thanks to a new program proposed by Cure HHT and funded by the CDC, Cure…
Read MoreSpotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast
Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare disease podcast, featuring Marianne Clancy – Executive Director at Cure HHT. Listen to the full episode on Wednesday 6/23, HHT Awareness Day! This FREE podcast will be available through the Biorasi website and on all major podcast streaming platforms including…
Read More