What the HHT?
A blog for the HHT community
However, looks can be deceiving… I, unfortunately, missed a blog entry last month and the opportunity to share with my HHT family. This was due to my inability to function at a normal level. The intravenous treatments I was receiving were abruptly changed in January of this year and I have been on a large…Read More
As an individual faced with HHT, I’ve discovered it involves a great deal of balancing, rearranging, adjusting and attempting to maintain the daily challenges of a healthy lifestyle that’s beneficial for me. This is definitely true for anyone faced with any type of sickness and disease, and the many discomforts and interruptions that brings. But…Read More
I am a wife, I am a mother, I am a daughter, I am a sister, I am a niece, I am a person affected by HHT and am passionate about the cause! I am focusing on HHT awareness today. No one is ever quite prepared for the loss of a loved one, especially if…Read More
June was HHT awareness month. The zeal to help those who may not know they have the disease was amazing. I read every letter and blog; “liked” the sentiments and banners on social media; and cheered for those running and walking for the cause. But there are other facets of what awareness brings that aren’t…Read More
Just after I learned I might have HHT, my family and I moved from the Boston area to Atlanta. Emory University Hospital was where I had my first PAVM embolization in 1993. The projected two hour operation extended to just over four hours, but was pronounced successful, so we were pleased. The PAVM was coiled…Read More