What the HHT?

A blog for the HHT community

Family

Keep the Hope, Keep the Faith

Tania Competiello

Allow me to introduce myself as I begin to write about my personal journey with HHT and how I arrived at where I am today: My name is Tania Competiello, I am 39 years old of Portuguese descent. I was born and raised in Portugal until the age of 11, when my family immigrated to…

Read More

The Little Green Binder

Katie's HHT Binder

I don’t know if you’re like me, but time is something I seem to need more of these days. Even if I schedule “nothing” on my calendar, something always creeps in and fills my day. As a busy wife and mom to three girls, ages 14, 12 and 9, I am always on the go! I…

Read More

The Genetic Puzzle of HHT

I never made it to my youngest daughter’s first birthday party in 1993. Due to intense pain in my back, I had to go to the local emergency room. I had been quite healthy until then. Because I was over 40, a routine chest X-ray was ordered with other diagnostics.  They thought I might have…

Read More

HHT – A Team Sport

If you’re a “sports” parent, you understand the anticipation of getting your child to varsity year. Many of us pick up second jobs to pay the fees for city recreation league, school league, church league and all the other ways we can “league” our kids to first string. I’m not a pushy parent, but definitely…

Read More