What the HHT?

A blog for the HHT community

Family

When You Marry Into HHT

Greetings, new friends! My name is Cassi Friday and although I married into HHT, this disease has a strong hold on my life. I hope I can contribute to this wonderful blog from the perspective of a wife, mother, scientist and advocate for my loved ones with HHT. I am a medical researcher with a…

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A New Year with Hope and Perseverance

2017

Happy New Year to the Cure HHT family, friends and supporters! I’m going to drop a quick note as I’m preparing to depart and visit my new granddaughter and first grandchild in Alabama. I’m so blessed to be strong enough to travel. My daughter’s pregnancy and delivery was successful and there were no issues or…

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Real Talk From the Heart

The past few months have been such a challenge and very difficult. At last check, my blood levels were an 8.7 and dropping. My iron saturation is below the lowest and I’m definitely not creating any hemoglobin (blood). I’m well aware that they have most likely dropped even more, and I need to verify this,…

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More Than Just Out of Shape

As high school volleyball season quickly approached, I tried my hardest to get in shape before practices began. I found this yearly task was more difficult than I remembered. The first day of practice hit me hard. The training hardly helped at all, and before long I was lagging behind everybody else. I pushed on though…

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But You Look So Good!

However, looks can be deceiving… I, unfortunately, missed a blog entry last month and the opportunity to share with my HHT family. This was due to my inability to function at a normal level. The intravenous treatments I was receiving were abruptly changed in January of this year and I have been on a large…

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