What the HHT?

A blog for the HHT community

Family

Real Talk From the Heart

The past few months have been such a challenge and very difficult. At last check, my blood levels were an 8.7 and dropping. My iron saturation is below the lowest and I’m definitely not creating any hemoglobin (blood). I’m well aware that they have most likely dropped even more, and I need to verify this,…

Read More

More Than Just Out of Shape

As high school volleyball season quickly approached, I tried my hardest to get in shape before practices began. I found this yearly task was more difficult than I remembered. The first day of practice hit me hard. The training hardly helped at all, and before long I was lagging behind everybody else. I pushed on though…

Read More

But You Look So Good!

However, looks can be deceiving… I, unfortunately, missed a blog entry last month and the opportunity to share with my HHT family. This was due to my inability to function at a normal level. The intravenous treatments I was receiving were abruptly changed in January of this year and I have been on a large…

Read More

5 Tips for Taking it Day by Day

As an individual faced with HHT, I’ve discovered it involves a great deal of balancing, rearranging, adjusting and attempting to maintain the daily challenges of a healthy lifestyle that’s beneficial for me. This is definitely true for anyone faced with any type of sickness and disease, and the many discomforts and interruptions that brings. But…

Read More

For My Aunt Edie

I am a wife, I am a mother, I am a daughter, I am a sister, I am a niece, I am a person affected by HHT and am passionate about the cause!  I am focusing on HHT awareness today. No one is ever quite prepared for the loss of a loved one, especially if…

Read More
Page 4 of 6123456