What the HHT?
A blog for the HHT community
Cure HHT Announcements
UAB named HHT Center of Excellence
Cure HHT is excited to announce that The University of Alabama at Birmingham (UAB) is now certified as an HHT Center of Excellence — providing expert, comprehensive care for HHT patients. UAB is currently accepting new patients, and welcomes your inquiries!
Under the guidance of co-Directors Drs. Jesse Jones and Theresa Caridi, the specialties that support care through the UAB COE include ENT, cardiology, gastrointestinal/ hepatology, genetics, interventional radiology, neuroradiology, neurosurgery, and pulmonology.
Read MoreRoot for Awareness – Crowdfunding Campaign
This year, in place of our virtual walk – Strides for Strength – we thought we’d change things up and branch out (pun intended) as we spotlight the importance of understanding your family’s HHT roots. Your stories of both struggle and triumph help people take notice! Fighting for awareness and making HHT more recognizable, however, does come at a cost. But hey, nobody said we couldn’t have a little fun while we do it! Rally your family and friends to help share your story, raise money for an amazing cause, and compete to WIN AMAZING PRIZES along the way!
Read MoreSeattle National Conference
HHT Patient & Physician Conference
Seattle, Washington | June 3-4, 2023
Register today to join us for our National Patient & Physician Conference on June 3-4, in Bellevue, Washington just outside of Seattle. Medical professionals can now receive CME credits for participation. This is an in-person conference. Registration is now open.
Read MoreFinal Days to Register! Denver Regional Conference
HHT Patient & Physician Conference
Denver, Colorado | March 25, 2023
Don’t miss your chance to connect with the local HHT community just outside Denver, Colorado in Aurora, on March 25, 2023, for a day of networking and learning for both patients and physicians. Medical professionals can now receive CME credits for participation. This is an in-person conference. Registration is now open.
Read MoreSingapore General Hospital Certified as HHT International Treatment Center
Increasing access to specialized care is an important part of Cure HHT’s mission. We’ve made significant progress in the last 30+ years, but work remains to realize a future where every patient has access to expert care. This gap in care is particularly present for many in our international community, which is why we’re unveiling a new “International Treatment Center” program aimed at increasing the number of knowledgeable physicians and care teams around the globe…
Read More