What the HHT?

A blog for the HHT community

Cure HHT Announcements

My HHT Tracker App – Download Now!

Make 2019 the year you take charge of your HHT!  Improve your health and understanding of the disease with “My HHT Tracker” now available globally on iOS. The free app allows you to privately track your health daily, store your data, organize medical tests, track nosebleeds — and only share your information with your health…

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Comprehensive HHT Resource: Living with HHT Book

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…

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Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

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It’s CFC Campaign Season

Are you employed by the Federal Government? If you are a Federal civilian, postal or military employee you can donate to Cure HHT through the Combined Federal Campaign (CFC). The CFC campaign season runs through January 11, 2019. Cure HHT – CFC #10233 DONATE to Cure HHT >

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Thanksgiving is National Family History Day

A Time to Share and Celebrate Your Family’s Health History HHT is a family affair. One of the best ways to take care of your family is to identify relatives that could be affected by HHT and what better time than Thanksgiving. The sooner you understand the link between your family’s health and your own, the…

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