What the HHT?

A blog for the HHT community

Cure HHT Announcements

Stanford’s Avastin Study is Complete!

Cure HHT is excited to announce that “A Randomized Controlled Trial of Bevacizumab for HHT-Related Epistaxis” (aka “Avastin Trial”) conducted at Stanford University recruited its last patient on February 5, 2019! THANK YOU to the 40 HHT patients who participated in the Avastin trial, many of whom traveled across the country to Palo Alto, California,…

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Comprehensive HHT Resource: Living with HHT Book

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…

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My HHT Tracker iOS App is Ready to Download!

My HHT Tracker: An iOS App To Help You Manage Your HHT Cure HHT is excited to announce that the iOS App My HHT Tracker is ready to download for all North American HHT patients!     My HHT Tracker is a 21st century tool that allows patients to educate themselves about HHT, track health conditions, store health…

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Research Funding Announcement: Vascular Malformations DOD Grants

The Peer Reviewed Medical Research Program (PRMRP) is committed to funding research that has the potential to impact the development and implementation of medical devices, drugs and clinical guidance that will enhance the precision and efficacy of prevention, diagnosis, and treatment across a wide range of disciplines. The Fiscal Year 2018 (FY18) Peer Reviewed Medical Research…

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