What the HHT?

A blog for the HHT community

Cure HHT Announcements

Top Geneticist and HHT CoE Director Announces Retirement

We are at once happy and sad to announce the retirement of Reed Pyeritz, MD, PhD, Co-Director of the University of Pennsylvania School of Medicine (“UPenn”) HHT Center of Excellence. Dr. Pyeritz has been an integral part of our organization since 2003 when UPenn became Cure HHT’s 7th HHT Center of Excellence. The knowledge and…

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HHT Education at the National Hemophilia Foundation Annual Conference

NHF_Kasthuri_Slide

This August, Dr. Raj Kasthuri, our HHT Center of Excellence Director from the University of North Carolina Chapel Hill, gave an exceptional HHT presentation (the most attended presentation of the day) at this week’s National Hemophilia Foundation’s Bleeding Disorder Conference: Future Therapies and Surveillance for Blood Disorders. With this year’s conference fully virtual, Dr. Kasthuri…

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Cure HHT Official Health Updates: Coronavirus Disease (COVID-19)

CURE HHT OFFICIAL STATEMENT COVID-19 Traducción Española Update:  August 6, 2020 | COVID-19 TESTING Scott Olitsky, MD, MBA – Cure HHT Chief Medical Officer James R. Gossage, MD – Director, Augusta University HHT Center of Excellence   Nasal swab testing for COVID-19 can be problematic for HHT patients because of the risk of inducing a…

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Ask The Doctor: Nosebleed Management 101 (Recorded)

Ask the Doctor - McBride & Olitsky

ASK THE DOCTOR: NOSEBLEED MANAGEMENT 101   Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING nosebleed related. From current drug therapies and surgical options, to food triggers and more, Dr. Olitsky outlines all the latest medical options for nosebleed…

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HHT Awareness in a BIG Way!

HHT Billboard

This June Awareness Month, Cure HHT was able to spread awareness in a huge way with a 24-foot-wide billboard! Our “More Than Just a Nosebleed” billboard was perched on Route 50 in Maryland, the most traveled highway to all the Maryland beaches where approximately 30,000 cars passed this sign every single day. Can you imagine…

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