What the HHT?

A blog for the HHT community

Cure HHT Announcements

Did you know that HHT and Pulmonary Hypertension can be connected?

Cure HHT Patient & Physician Conference October 20-21, 2018 Ann Arbor, Michigan   There are various ways the heart can be affected in HHT, including heart failure from liver AVMs and pulmonary hypertension (PH). In fact, about 15 to 20 percent of people with HHT have at least mildly elevated pulmonary artery pressures, which means they either have…

Read More

Did you know there are promising drug therapies for HHT?

Cure HHT Patient & Physician Conference October 20-21, 2018 Ann Arbor, Michigan   Research is the foundation of all disease treatments and advances toward a cure. Join us in Michigan on October 20-21 to learn from experts about new drug therapies on the horizon for HHT, where we are on the path to a cure…

Read More

Fall Newsletter 2018

Check out the Cure HHT Spring Newsletter 2018 Volume 3. This issue includes a publication in The Laryngoscope on the Efficacy of Topical Sesame/Rose Geranium Oil Compound in Patients with HHT-Associate Epistaxis (Nosebleeds), an update on HHT research, HHT conferences, a recap on HHT Awareness month activities, and much more. Download PDF Now > View the…

Read More

HHT Recognized in WebMD Article!

WebMD has highlighted HHT in an article titled “What Does Your Nose Say About Your Health?“. This recognition by one of the top healthcare websites shows the effectiveness of the our community’s efforts to spread awareness and educate about HHT. With your help we continue to show the world that HHT is more than just…

Read More