Skip to content

What the HHT?

A blog for the HHT community

Help KISS HHT goodbye!

February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day®), for each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their…

Read More

Rare as One: Cure HHT receives CZI grant extension

We are thrilled to announce that our grant in the Chan Zuckerberg Initiative – Rare As One will be extended for another year! It’s hard to believe it has been 2 years since we were first selected as one of only thirty rare disease organizations to be a part of CZI – Rare as One.…

Read More

AnemoCheck Mobile App

AnemoCheck Mobile – the world’s first non-invasive, equipment-free smartphone app for noninvasive and instant hemoglobin level estimation is now available for Android and iOS. The app allows users to check their hemoglobin levels using the camera of their phone to take pictures of their fingernail beds. Cure HHT partnered with the makers of the app,…

Read More

Cure HHT Participates in PHA’s Associated Conditions Summit

Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT patients have PH. In November 2021, Cure HHT participated in the The Pulmonary Hypertension Association (PHA) Associated Conditions Partner Summit to explore ways to improve the understanding of PH and reduce barriers to diagnosis among at-risk groups, including those with…

Read More
Scroll To Top