What the HHT?

A blog for the HHT community

Cure HHT Announcements

Spring Newsletter 2018

Check out the Cure HHT Spring Newsletter 2018 Volume 2. This issue includes a publication in The Journal of Pediatrics on the Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population, an update on HHT research, HHT Awareness month activities, new education materials and resources for genetic testing and much more.…

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Research Funding Announcement: Vascular Malformations DOD Grants

The Peer Reviewed Medical Research Program (PRMRP) is committed to funding research that has the potential to impact the development and implementation of medical devices, drugs and clinical guidance that will enhance the precision and efficacy of prevention, diagnosis, and treatment across a wide range of disciplines. The Fiscal Year 2018 (FY18) Peer Reviewed Medical Research…

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The First Comprehensive Book on “Living with HHT”

Living With HHT Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia Paperback, 200 pages   Sara Palmer, PhD and Johns Hopkins University Press announce the first comprehensive book on HHT, released in December 2017. Sara addresses how HHT patients can maintain their own emotional health, help other family members including children, partners and parents, and live life as fully as…

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Angiogenesis Publication!

We are excited to announce the publication of the HHT Scientific Conference Executive Summary and Abstracts in Angiogenesis. This publication is a critical resource for HHT patients, physicians and scientists. Click on the links below to review the online publications for the HHT International Scientific Conference. Executive Summary Conference Abstracts The 12th HHT International Scientific…

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