What the HHT?

A blog for the HHT community

Blog

Hosting our First Blood Drive for HHT Awareness!

Since marrying into an HHT family, I have felt a need to do more to advocate for my family members, raise awareness, and help in any way I can. I know how precious both money and blood can be to this community, but we are not always in a financial position to give to the…

Read More

It’s All About Balance

This month, I’m spreading positivity! Focusing on me, and you, and how we should be taking better care of our overall well-being. Remember, you may have HHT, but HHT does not have you – it does not define you and all you aspire to be! I’ll be the first to admit some days are easier…

Read More

Blissfully Ignorant or Hyper-aware?

Does anyone else teeter between these two states of mind? My husband and I often discuss which is better – As the person with HHT, he would rather be more on the blissfully ignorant side. His symptoms are not very severe (no AVMs we know of, but a lot of nosebleeds), and his family rarely discusses their medical issues, if…

Read More

One of the Many Faces of HHT

I’ve recommitted to writing my monthly blog with a focus on HHT awareness, being newly diagnosed with HHT and ultimately living with HHT.  This month, I wanted to focus on the many faces of HHT, starting with my own. HHT does not discriminate against race, age, gender, weight, ethnicity, nationality or any other characteristic known…

Read More
Page 3 of 812345678