What the HHT?
A blog for the HHT community
Posts by Talia Lewis
Dr. Conrad’s Story: A Physician’s View
For Dr. Miles Conrad, HHT care is built on more than procedures and treatment plans. It is built on trust, careful listening, and the small moments of expert guidance that can change a patient’s path. In this final Visible Together story, Dr. Conrad reflects on what patients with HHT have taught him, why expert care matters, and why this moment of innovation deserves urgent support.
Read MoreAlder Hey Children’s Hospital Achieves Cure HHT Center of Excellence Designation
Newly recognized international treatment center expands access to expert, coordinated care for people living with HHT MONKTON, MD—Cure HHT is proud to announce that Alder Hey Children’s Hospital in Liverpool, United Kingdom, has been officially recognized as an HHT Center of Excellence, expanding access to expert, coordinated care for people living with hereditary hemorrhagic telangiectasia…
Read MoreDavid’s Story: The Family HHT Leaves Behind
David does not have HHT, but HHT has shaped his family for generations. Through loss, caregiving, and his sister Carol’s experience with expert care, David’s story shows why visibility matters — not only for patients, but for every family still searching for answers.
Read MoreCarol’s Story: A Life Made Visible
For decades, Carol had to advocate for herself through severe bleeding, anemia, transfusions, and medical uncertainty. Today, expert HHT care has helped give her life back — and she is sharing her story so more patients can be seen, believed, and treated sooner.
Read MoreDiagonal Therapeutics Open House & HHT Patient Forum
Open House and HHT Patient Forum at Diagonal Therapeutics Friday, June 26 | 9:30am-1:00pm ET Join patients, caregivers, clinicians, and researchers for a day of connection, learning, and community focused on hereditary hemorrhagic telangiectasia (HHT) in celebration of HHT Awareness Month at Diagonal Therapeutics (200 Arsenal Yards Boulevard #220, Watertown, Massachusetts, 02472). Register to…
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