What the HHT?
A blog for the HHT community
Blog
Urgent Action Needed: Protect Funding for HHT Research
Dear HHT Community, We need your help right now to protect critical funding for HHT research. As early as this Tuesday, the House will be voting on a Continuing Resolution to fund government programs through the end of Fiscal Year 2025. Unfortunately, the legislation cuts funding for the Department of Defense’s Congressionally Directed Medical…
Read MoreDiagonal Therapeutics Initiates Natural History Study of Adults Living with Hereditary Hemorrhagic Telangiectasia (HHT), a Rare Bleeding Disorder with No Approved Treatments
Diagonal Therapeutics Initiates Natural History Study of Adults Living with Hereditary Hemorrhagic Telangiectasia (HHT), a Rare Bleeding Disorder with No Approved Treatments Study conducted in partnership with Cure HHT will inform future clinical trials and treatment options for people living with HHT Company recently progressed DIAG723 into IND-enabling studies for HHT and pulmonary arterial hypertension…
Read MoreInnovative Hematology Achieves Prestigious HHT Center of Excellence Certification
We are thrilled to share that Innovative Hematology, home to the Indiana Hemophilia and Thrombosis Center (IHTC), has officially earned the coveted designation as an HHT Center of Excellence. This marks another significant step forward in our fight to increase access to specialized care for our community. This prestigious certification places Innovative Hematology among an…
Read MoreImportant FDA Update Regarding Iron Infusions
There’s been a change to the safety label for Injectafer®, an iron infusion often used to treat iron deficiency. The FDA now includes HHT as a risk factor for developing symptomatic hypophosphatemia (low phosphate levels), a condition that can affect up to 70% of patients who receive Injectafer. This important update comes from Cure HHT’s…
Read MoreCure HHT’s 2024 Impact Report
2024: A Year of Significant Transformation and Progress Every year is a different chapter in our story – each bringing us closer to our ultimate goal.. But 2024 was defined by new especially significant and meaningful results in moving science and research forward. This year, thanks to the efforts of our new Therapeutic Development team,…
Read More