What the HHT?
A blog for the HHT community
Blog
2025 Impact Report: A Year of Momentum, Milestones, and Measurable Progress
This year, the HHT community proved—again—that determination moves mountains. Our 2025 Impact Report highlights a year defined by scientific breakthroughs, expanded clinical access, and the relentless drive of patients, families, clinicians, and supporters who believe in a world where HHT is found early, treated effectively, and ultimately cured. From pushing new research forward to strengthening…
Read MoreHHT: A Whole System Disease
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
Read MoreInvitation: 2025 HHT Patient and Physician National Conference
I’m so excited to introduce myself to this amazing community. My name is Hellen Tecle, and I stepped into the role of Manager of Community Events and Education here at Cure HHT just a little over four months ago. In that short time, I’ve been amazed by the strength of this mighty organization, and even…
Read MoreCure HHT Leads Global Breakthrough in Bleeding Standards, Paving the Way for Future HHT Therapies
International Consensus Report Published in the American Journal of Hematology Aims to Transform HHT Research, Treatment, and Clinical Trials
Read MoreA History of Pazopanib
There are no FDA-approved therapeutics for the treatment of HHT. Cure HHT sought to change that. In many ways, the history of pazopanib is not unlike the story of the HHT community. Both are defined by persistence: a long battle for awareness, funding, and ultimately, solutions. Now, after years of dedicated effort, the paths of…
Read More