What the HHT?
A blog for the HHT community
Blog
Sharing to make a difference
Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…
Read MoreThis Season We’re Thankful for You
Believe it or not, we’ve come a long way in diagnosing and treating HHT. This fall season we are expressing our gratitude to everyone who has helped us so far in our journey to find a cure to HHT.
Read MoreMy Experience with Online Community Groups + HHT: The Good, the Bad and the Ugly (Part 3)
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…
Read MoreMy Experience with Online Community Groups + HHT: The Good, the Bad and the Ugly (Part 2)
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…
Read MoreMy Experience with Online Community Groups + HHT: The Good, the Bad and the Ugly (Part 1)
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…
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