What the HHT?
A blog for the HHT community
Front Page Announcements
Patient & Physician Conferences Announced!
Join members of our HHT community – patients and physicians alike – as we come together for our both regional and national conferences to meet members of our local and extended HHT community, as well as learn more about HHT and share new scientific advancements. This year, medical professionals can now receive CME credits for participation!
Open registration dates will be released soon.
Read MoreThank You for an Amazing Year
We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.
If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.
Read MoreNEW! Text to Give
You can now support Cure HHT this holiday season via text! As an added bonus, when you make a donation through your mobile device, you can choose to receive future HHT news and updates directly to your phone. Message & data rates may apply. Donate today to have your gift DOUBLED by a generous group of donors. To give, text “donate” to (410) 237-0199.
Read MoreNew Therapeutic Development Arm Takes Shape
A Message From Marianne Clancy, Cure HHT Executive Director:
As you have read in the fall edition of our newsletter, our foundation has invested in the creation of a new “Therapeutic Development Arm” to help us more directly collaborate with the medical and scientific community to fast-track life-changing breakthroughs in HHT.
I am writing to you now to share the tremendously exciting news that Dr. Murali Chakinala will be joining Cure HHT in the role of Senior Clinical Research Advisor. In this role…
Read MoreLynne Sekarski, RN receives the Heroes in Action Award from the March of Dimes
In recognition of her tireless work with pediatric HHT patients at the Washington University School of Medicine HHT Center of Excellence, the March of Dimes organization presented Ms. Sekarski, HHT pediatric nurse and long-time CoE Coordinator, with this incredible honor for her years of dedicated service caring for children with HHT. She was nominated by the many grateful families she has worked with, along with colleagues and supervisors. We are so incredibly proud of the work Ms. Sekarski does for our HHT community. Congratulations!
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