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What the HHT?

A blog for the HHT community

Online Education: Research Roundtable (RECORDED)

By Riley Blevins | January 12, 2023 |

Delve into  the exciting clinical research projects underway in HHT! Cassi Friday, PhD (Overview) will provide an overview of what goes into a clinical trial. Dr. Marie Faughnan (Brain AVM Study), Dr. Keith McCrae (PATH Study), Dr. James Gossage (Pazopanib Trial), and Brian Mangilog (Rare Genomes Project) will share more research projects and the potential impacts for patients. Advancements in research are not possible without the participation of patients. These various studies range from drug therapy trials to tissue donations and genetic testing. Recording now available.

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Patient & Physician Conferences Announced!

By Riley Blevins | January 1, 2023 |

Join members of our HHT community – patients and physicians alike – as we come together for our both regional and national conferences to meet members of our local and extended HHT community, as well as learn more about HHT and share new scientific advancements. This year, medical professionals can now receive CME credits for participation!

Open registration dates will be released soon.

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Thank You for an Amazing Year

By Riley Blevins | December 30, 2022 |

We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.

If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.

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NEW! Text to Give

By Riley Blevins | December 21, 2022 |

You can now support Cure HHT this holiday season via text! As an added bonus, when you make a donation through your mobile device, you can choose to receive future HHT news and updates directly to your phone. Message & data rates may apply. Donate today to have your gift DOUBLED by a generous group of donors. To give, text “donate” to (410) 237-0199.

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