What the HHT?
A blog for the HHT community
Posts by Ashley Watkins
Meta: Accelerating Research on Rare Diseases
March 19, 2021 | Meta | By Jennifer L. Minnick “At a recent workshop about Meta, Executive Director of Cure HHT Marianne Clancy noticed a new scientific paper about the rare disease she’s focused on curing — in the form of a case report from Sudan. Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder that causes…
Read MoreInternational HHT Guidelines: Pregnancy & Women’s Issues
International HHT Guidelines Webinar Series Topic: Pregnancy & Women’s Issues Mon., May 17th | 5:00 p.m. (ET) Join Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology, Toronto HHT Centre of Excellence and Dr. Andrea Lausman, Maternal fetal medicine specialist, Toronto HHT Centre of Excellence as they discuss why pregnant woman with HHT should be…
Read MoreNEW Webinar: Nuts and Bolts of a Clinical Trial – PATH-HHT Study
Nuts and Bolts of a Clinical Trial PATH-HHT Study Wed., May 12th | 6:00 p.m. (ET) This discussion will introduce the audience to clinical trials, including the factors that are considered when a clinical trial is designed, the different types of clinical trials, and the importance of clinical trials in developing new treatments for…
Read MoreInternational HHT Guidelines: Pediatrics
International HHT Guidelines Webinar Series Topic: Pediatrics Sat., May 1st | 12:00 p.m. (ET) Join Dr. Andy White, Co-Director, St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Children’s Hospital HHT Center of Excellence as they discuss the new pediatric international HHT guidelines. While some manifestations of HHT, such as…
Read MoreLas Guías Internacionales de HHT: Anemia (Recorded)
Las Guías Internacionales de HHT Anemia 27 de Marzo | 9:00 a.m. (ET) (10 a.m. Argentina) El Dr. Marcelo Serra, médico internista y Director de la Unidad HHT, Hospital Italiano de Buenos Aires (Centro de Referencia) y la Dra. Yesica Lijdens (Otorrinolaringologa de la Unidad HHT Hospital Italiano de Buenos Aires) nos brindarán información sobre…
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