What the HHT?
A blog for the HHT community
Bedside to Bench: How the HHT Community Drives Research Initiatives Wed., November 10th 7:00 p.m. (ET) Earlier this year, over 1,200 HHT patients, caregivers, clinicians and researchers alike all responded to surveys about their thoughts on all things HHT. Your voices were heard! Join Cassi Friday, Caregiver and Dr. Anthony Anzell as they present the survey…Read More
Shopping for a cure has never been easier! Our new Cure HHT store, hosted by Shopify, provides so many great options for spreading awareness or gift giving – just in time for the holidays! Shop from an assortment of items including t-shirts, notepads and masks. And the best part, 100% of the proceeds go to…Read More
Las Guías Internacionales de HHT Epistaxis en HHT: Tratamiento Farmacológico (solo en español) El Dr. Marcelo Serra, Director de la Unidad de HHT del Hospital Italiano de Buenos Aires brinda información sobre el tratamiento farmacológico no quirúrgico del sangrado nasal en HHT. También revisó las recomendaciones de las nuevas Directrices internacionales de HHT para el…Read More
International HHT Guidelines Online Education Series Topic: Brain Vascular Malformations (VMs) Tue., September 21 | 7:00 p.m. (ET) Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she discusses Brain Vascular Malformations (VMs) as they relate to HHT. Dr. Faughnan is a renowned HHT specialist and will walk the audience through a comprehensive…Read More
Liver involvement occurs in approximately 75% of people with HHT. While many people are asymptomatic, the complications associated with liver involvement have historically been under diagnosed. These complications include arterioportal shunting leading to portal hypertension and arteriosystemic shunting leading to high output cardiac failure (HOCF). HOCF occurs much more frequently than has previously been considered.…Read More