What the HHT?
A blog for the HHT community
Front Page Announcements
Cure HHT’s Registry Research Selected for Oral Presentation at American Society of Hematology 2025 Annual Meeting
Presentation will raise critical awareness of HHT among hematologists, expanding understanding and earlier recognition of this underdiagnosed genetic disease MONKTON, Md., October 20, 2025 — Cure HHT, the only organization in the world solely dedicated to finding a cure for hereditary hemorrhagic telangiectasia (HHT) and improving the lives of those affected, today announced that…
Read MoreInvitation: 2025 HHT Patient and Physician National Conference
I’m so excited to introduce myself to this amazing community. My name is Hellen Tecle, and I stepped into the role of Manager of Community Events and Education here at Cure HHT just a little over four months ago. In that short time, I’ve been amazed by the strength of this mighty organization, and even…
Read More67th ASH Annual Meeting and Exposition
67th ASH Annual Meeting and Exposition December 5-9, 2025 Mark your calendars and get ready to join Cure HHT at the 67th ASH Annual Meeting and Exposition. We will be hosting a Friday Satellite Symposia entitled, “Targeting Angiogenesis and Managing Severe Anemia in Vascular Bleeding Disorders:Hereditary Hemorrhagic Telangiectasia, Von Willebrand Disease, and Beyond” sponsored by…
Read More2025 HHT Capitol Hill Day
2025 HHT Capitol Hill Day Wednesday, September 10, | 4-6pm ET Make a difference and let your voice be heard. Join us for an HHT Congressional Briefing in Washington, DC! Confirm your interest here.
Read More2025 HHT Patient and Physician National Conference
2025 HHT Patient and Physician National Conference November 8-9, 2025 Mark your calendars and get ready to join us for the 2025 HHT Patient and Physician National Conference hosted in Dallas, Texas! Details: Two-day event will bring together HHT experts, patients, and healthcare professionals Sessions will share insights about the patient journey as well as…
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