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What the HHT?

A blog for the HHT community

Why Proper Screening and Treatment Can Save Your Life

It’s June—warm, spring days, flowers, playing outside—and HHT Awareness Month! If you’re reading this post, you probably know at least a little about HHT. But most people, including many doctors, have never heard of HHT. In fact, most people who have HHT don’t know that they have it! Which is precisely why awareness is so…

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Living with HHT Book

Have you read my new book, Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia? It’s designed to tell you everything you need to know about HHT to keep yourself and your family as healthy as possible and to cope with the stresses of having HHT. I’m happy to report that the book, released…

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HHT Global Awareness Day

Today is June 23, 2017 and it’s HHT Global Awareness Day! As a person who has HHT disease and the author of a new book called Living with HHT, I’m excited to be part of this special day devoted to HHT awareness—and I hope my book will contribute to HHT awareness every day.  If you’re…

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