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What the HHT?

A blog for the HHT community

Blood Drive: Boston

Blood Drive: Boston June 19-20, 2025 Calling on Boston! Our Director of Research, Cassi Friday, is organizing a local blood drive in Boston from June 19-20. Interested in donating? Fill out this form: https://curehht.qualtrics.com/jfe/form/SV_9GDuLOZR8QoM0PI Why: To better understand HHT and develop therapies, we need human tissues to study. The lack of available blood samples and…

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Webinar: Mental Health & HHT

Webinar: Mental Health & HHT Tues., June 24th  |  12:00 p.m. (ET) Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical challenges, and this webinar will address the often-overlooked impact on mental well-being. Join us for a supportive discussion exploring the emotional aspects of managing a chronic condition like HHT. Our expert speaker Abbey J.…

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Cure HHT to Host 15th HHT International Scientific Conference

One of the most meaningful ways Cure HHT works to advance research and science is through our HHT International Scientific Conference. Every two years, the world’s brightest minds in HHT medicine and science convene at our meeting to discuss the latest research. These events fuel collaboration between physicians and scientists, helping to fast track the…

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Regional HHT Conference – Aurora, Colorado

Join Us for Two Special HHT Events! March 28th – CE Healthcare Provider Education Day A FREE event for HHT providers to connect, earn CE credits, and expand their knowledge about HHT. Enjoy lunch and an afternoon reception as part of this enriching day. March 29th – HHT Family Day A FREE event for HHT…

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