What the HHT?
A blog for the HHT community
Events
Facebook Live: The Power of Advocacy
Advocacy changes lives—and it changes policy. Join Cure HHT for a free 45-minute Facebook Live panel: The Power of Advocacy. What we’ll cover – What HHT Capitol Hill Day is (and what it’s not) – What to expect as a participant – What we’re advocating for and why it matters – Q&A: bring your questions—especially…
Read MoreCapitol Hill Day 2026
This is your moment. Join us in Washington, DC. Stand up for the HHT community. Help make HHT impossible to overlook — and impossible to delay. Let’s make 2026 the year lawmakers finally recognize the urgency we live with every day and commit to the progress we know is possible. Become an HHT advocate: curehht.org/advocacy26
Read MoreKnowledge is Power: The 5 Biggest Changes in HHT Care
Knowledge is Power: The 5 Biggest Changes in HHT Care Thurs., February 26th | 7:00 p.m. (ET) Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at a center of excellence – this session is…
Read MoreComprehensive Guide to Managing Your Nosebleeds
Webinar: Comprehensive Guide to Managing Your Nosebleeds Thurs., January 29th | 2:00 p.m. (ET) 90% of HHT patients deal with chronic and recurring nosebleeds –bleeds that can range in severity from killers of spontaneity, drive social anxiety or as severe as causing serious medical complications. However, many new treatment options are available to help…
Read More67th ASH Annual Meeting and Exposition
67th ASH Annual Meeting and Exposition December 5-9, 2025 Mark your calendars and get ready to join Cure HHT at the 67th ASH Annual Meeting and Exposition. We will be hosting a Friday Satellite Symposia entitled, “Targeting Angiogenesis and Managing Severe Anemia in Vascular Bleeding Disorders:Hereditary Hemorrhagic Telangiectasia, Von Willebrand Disease, and Beyond” sponsored by…
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