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What the HHT?

A blog for the HHT community

Your Questions Answered: An Informative Session on an HHT Clinical Trial

Upcoming Webinar: An Informative Session on an HHT Clinical Trial Thurs., September 11th  |  5:00 p.m. (ET)   Join us for an informative webinar about hereditary hemorrhagic telangiectasia (HHT). The webinar is being run by Cure HHT and will introduce an upcoming clinical trial evaluating whether an investigational medication has the potential to treat HHT.…

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2025 HHT Capitol Hill Day

2025 HHT Capitol Hill Day Wednesday, September 10, | 4-6pm ET Make a difference and let your voice be heard. Join us for an HHT Congressional Briefing in Washington, DC! Confirm your interest here.

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2025 HHT Patient and Physician National Conference

2025 HHT Patient and Physician National Conference November 8-9, 2025 Mark your calendars and get ready to join us for the 2025 HHT Patient and Physician National Conference hosted in Dallas, Texas! Details: Two-day event will bring together HHT experts, patients, and healthcare professionals Sessions will share insights about the patient journey as well as…

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Recording Available: Empowering Patient Stories

Facebook Live: Empowering Patient Stories Thurs., June 19th  |  1:00 p.m. (ET) Join us for an inspiring and informative webinar, “Empowering Patient Stories,” on June 19 at 1:00 PM ET. This session is designed to equip you with the tools and confidence to share your unique HHT journey effectively. We are honored to feature Jessica…

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