What the HHT?
A blog for the HHT community
Today is June 23, 2017 and it’s HHT Global Awareness Day! As a person who has HHT disease and the author of a new book called Living with HHT, I’m excited to be part of this special day devoted to HHT awareness—and I hope my book will contribute to HHT awareness every day. If you’re…Read More
Through awareness, we are unifying the HHT community, educating the public and advocating for patients and families all across the world. And through awareness, Cure HHT is able to make strides in fulfilling its mission to find, treat and cure this disease. This Little Light of Mine Marsha Hansen’s Special Tribute for HHT Marsha Hansen came to us as so many do, wishing to raise awareness and…Read More
As a child, I LOVED going to the dentist. I hope by starting Eleanor out young, I can instill an excitement about dental health in her to avoid any fears/anxieties about the dentist in the future. Going to the dentist with HHT can add a bit of complexity. If you have or don’t know if you…Read More
Does anyone else teeter between these two states of mind? My husband and I often discuss which is better – As the person with HHT, he would rather be more on the blissfully ignorant side. His symptoms are not very severe (no AVMs we know of, but a lot of nosebleeds), and his family rarely discusses their medical issues, if…Read More
I’ve recommitted to writing my monthly blog with a focus on HHT awareness, being newly diagnosed with HHT and ultimately living with HHT. This month, I wanted to focus on the many faces of HHT, starting with my own. HHT does not discriminate against race, age, gender, weight, ethnicity, nationality or any other characteristic known…Read More