What the HHT?
A blog for the HHT community
I’ve recommitted to writing my monthly blog with a focus on HHT awareness, being newly diagnosed with HHT and ultimately living with HHT. This month, I wanted to focus on the many faces of HHT, starting with my own. HHT does not discriminate against race, age, gender, weight, ethnicity, nationality or any other characteristic known…Read More
Growing up, I was always in some sport. It began with t-ball, then transitioned into fast pitch softball where I was running back and forth from one field of play to another. In middle school, I had track right after school and then my mom would drive me to the next town over for softball…Read More
One of the things I love about Cure HHT is the focus on research and clinical trials for patients. I’d like to use this post to talk about the Avastin clinical trial, which I recently saw posted on Cure HHT’s media pages. Before delving into the background on this drug and its potential benefits to…Read More
I had just gotten back from my best friends house. My eyes were red and puffy, and I tried to hide them behind my hand as I ran into my house and down the stairs. The questions to follow if my parents had seen me upset would only make me feel worse. At times like these,…Read More
Happy New Year to the Cure HHT family, friends and supporters! I’m going to drop a quick note as I’m preparing to depart and visit my new granddaughter and first grandchild in Alabama. I’m so blessed to be strong enough to travel. My daughter’s pregnancy and delivery was successful and there were no issues or…Read More