What the HHT?
A blog for the HHT community
Awareness
Cozy Games for a Cure
Cozy Games for a Cure Sat., June 21, 2025 | 10am CST Gaming streamer consolecaito will be hosting a charity stream supporting Cure HHT on June 21 at 10am CST! More details about giveaways, watch links, and more will be released shortly.
Read MoreBlood Drive: Boston
Blood Drive: Boston June 19-20, 2025 Calling on Boston! Our Director of Research, Cassi Friday, is organizing a local blood drive in Boston from June 19-20. Interested in donating? Fill out this form: https://curehht.qualtrics.com/jfe/form/SV_9GDuLOZR8QoM0PI Why: To better understand HHT and develop therapies, we need human tissues to study. The lack of available blood samples and…
Read MoreWebinar: Mental Health & HHT
Webinar: Mental Health & HHT Tues., June 24th | 12:00 p.m. (ET) Living with Hereditary Hemorrhagic Telangiectasia (HHT) presents unique physical challenges, and this webinar will address the often-overlooked impact on mental well-being. Join us for a supportive discussion exploring the emotional aspects of managing a chronic condition like HHT. Our expert speaker Abbey J.…
Read MoreImportant FDA Update Regarding Iron Infusions
There’s been a change to the safety label for Injectafer®, an iron infusion often used to treat iron deficiency. The FDA now includes HHT as a risk factor for developing symptomatic hypophosphatemia (low phosphate levels), a condition that can affect up to 70% of patients who receive Injectafer. This important update comes from Cure HHT’s…
Read MoreYour donations do more than you may realize
Hi! For those who may not know me, I’m Cassi Friday and I’m the Director of Research here at Cure HHT. That’s not the only hat I wear — My husband, Anthony has HHT, and I’m a mom of three little kiddos, two who also have HHT. It goes without saying, I’m deeply passionate about…
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