What the HHT?
A blog for the HHT community
Posts by Valaree Machen
Comprehensive Guide to Managing Your Nosebleeds
Webinar: Comprehensive Guide to Managing Your Nosebleeds Thurs., January 29th | 2:00 p.m. (ET) 90% of HHT patients deal with chronic and recurring nosebleeds –bleeds that can range in severity from killers of spontaneity, drive social anxiety or as severe as causing serious medical complications. However, many new treatment options are available to help…
Read MoreCure HHT’s Registry Research Selected for Oral Presentation at American Society of Hematology 2025 Annual Meeting
Presentation will raise critical awareness of HHT among hematologists, expanding understanding and earlier recognition of this underdiagnosed genetic disease MONKTON, Md., October 20, 2025 — Cure HHT, the only organization in the world solely dedicated to finding a cure for hereditary hemorrhagic telangiectasia (HHT) and improving the lives of those affected, today announced that…
Read MoreHHT: A Whole System Disease
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
Read MoreInvitation: 2025 HHT Patient and Physician National Conference
I’m so excited to introduce myself to this amazing community. My name is Hellen Tecle, and I stepped into the role of Manager of Community Events and Education here at Cure HHT just a little over four months ago. In that short time, I’ve been amazed by the strength of this mighty organization, and even…
Read More67th ASH Annual Meeting and Exposition
67th ASH Annual Meeting and Exposition December 5-9, 2025 Mark your calendars and get ready to join Cure HHT at the 67th ASH Annual Meeting and Exposition. We will be hosting a Friday Satellite Symposia entitled, “Targeting Angiogenesis and Managing Severe Anemia in Vascular Bleeding Disorders:Hereditary Hemorrhagic Telangiectasia, Von Willebrand Disease, and Beyond” sponsored by…
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