What the HHT?
A blog for the HHT community
Posts by Valaree Machen
Cure HHT’s Registry Research Selected for Oral Presentation at American Society of Hematology 2025 Annual Meeting
Presentation will raise critical awareness of HHT among hematologists, expanding understanding and earlier recognition of this underdiagnosed genetic disease MONKTON, Md., October 20, 2025 — Cure HHT, the only organization in the world solely dedicated to finding a cure for hereditary hemorrhagic telangiectasia (HHT) and improving the lives of those affected, today announced that…
Read MoreHHT: A Whole System Disease
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
Read MoreInvitation: 2025 HHT Patient and Physician National Conference
I’m so excited to introduce myself to this amazing community. My name is Hellen Tecle, and I stepped into the role of Manager of Community Events and Education here at Cure HHT just a little over four months ago. In that short time, I’ve been amazed by the strength of this mighty organization, and even…
Read More67th ASH Annual Meeting and Exposition
67th ASH Annual Meeting and Exposition December 5-9, 2025 Mark your calendars and get ready to join Cure HHT at the 67th ASH Annual Meeting and Exposition. We will be hosting a Friday Satellite Symposia entitled, “Targeting Angiogenesis and Managing Severe Anemia in Vascular Bleeding Disorders:Hereditary Hemorrhagic Telangiectasia, Von Willebrand Disease, and Beyond” sponsored by…
Read MoreYour Questions Answered: An Informative Session on an HHT Clinical Trial
Upcoming Webinar: An Informative Session on an HHT Clinical Trial Thurs., September 11th | 5:00 p.m. (ET) Join us for an informative webinar about hereditary hemorrhagic telangiectasia (HHT). The webinar is being run by Cure HHT and will introduce an upcoming clinical trial evaluating whether an investigational medication has the potential to treat HHT.…
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