What the HHT?
A blog for the HHT community
Posts by Valaree Machen
Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk
Upcoming Webinar: Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk Thurs., March 19th | 12:00-1:30 p.m. ET In this session we will discuss How were the 3 HHT genes identified? What functions do these genes encode? How do the mutations cause HHT? Finally, what does all this mean for the search for…
Read MoreNew Federal Momentum for HHT: $3M for Centers and Dedicated Research Eligibility
We are thrilled to share two major wins to celebrate today: the President has signed the FY26 funding agreement which includes $3,000,000 for HHT Treatment Centers and—huge for the research world—“Hereditary Hemorrhagic Telangiectasia (HHT)” is listed as its own eligible topic area under the Peer Reviewed Medical Research Program (PRMRP)! Next stop: the President’s signature…
Read MoreFacebook Live: The Power of Advocacy
Advocacy changes lives—and it changes policy. Join Cure HHT for a free 45-minute Facebook Live panel: The Power of Advocacy. What we’ll cover – What HHT Capitol Hill Day is (and what it’s not) – What to expect as a participant – What we’re advocating for and why it matters – Q&A: bring your questions—especially…
Read MoreReflections from the Next Generation
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
Read MoreInvitation: 2026 HHT Capitol Hill Day in Washington, DC
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
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