What the HHT?
A blog for the HHT community
Posts by Valaree Machen
2025 HHT Patient and Physician National Conference
2025 HHT Patient and Physician National Conference November 8-9, 2025 Mark your calendars and get ready to join us for the 2025 HHT Patient and Physician National Conference hosted in Dallas, Texas! Details: Two-day event will bring together HHT experts, patients, and healthcare professionals Sessions will share insights about the patient journey as well as…
Read MoreHHT Horizons: Collaboration for Innovative Care in South Africa
HHT Horizons: Collaboration for Innovative Care in South Africa Fri., September 19, 2025 We are proud to endorse the upcoming event, HHT Horizons: Collaboration for Innovative Care in South Africa hosted by the BloodSA Foundation! The conference will be held on September 19, 2025 in Cape Town. Learn more. Register
Read MoreCure HHT Leads Global Breakthrough in Bleeding Standards, Paving the Way for Future HHT Therapies
International Consensus Report Published in the American Journal of Hematology Aims to Transform HHT Research, Treatment, and Clinical Trials
Read MoreA History of Pazopanib
There are no FDA-approved therapeutics for the treatment of HHT. Cure HHT sought to change that. In many ways, the history of pazopanib is not unlike the story of the HHT community. Both are defined by persistence: a long battle for awareness, funding, and ultimately, solutions. Now, after years of dedicated effort, the paths of…
Read MoreThis Landmark HHT Study Could Shift National Attention
We’re excited to share some truly important news for the HHT community. A major new study done in collaboration between Cure HHT, Massachusetts General Hospital, and Diagonal Therapeutics — just published in the American Journal of Hematology — delivers something we’ve never had before: hard data that proves HHT is a serious, high-impact disease that’s…
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