What the HHT?
A blog for the HHT community
Advocacy
Reflections from the Next Generation
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole system disease, one that touches organs, families, and futures.
Read MoreCapitol Hill Day 2026
This is your moment. Join us in Washington, DC. Stand up for the HHT community. Help make HHT impossible to overlook — and impossible to delay. Let’s make 2026 the year lawmakers finally recognize the urgency we live with every day and commit to the progress we know is possible. Become an HHT advocate: curehht.org/advocacy26
Read More2025 HHT Capitol Hill Day
2025 HHT Capitol Hill Day Wednesday, September 10, | 4-6pm ET Make a difference and let your voice be heard. Join us for an HHT Congressional Briefing in Washington, DC! Confirm your interest here.
Read MoreTime is Running Out: Support HHT Centers by May 19th
We are calling upon this mighty community to help support our efforts to protect and expand federal funding for our HHT Center of Excellence program. We need as many community members as possible to encourage your members of Congress to sign our “Dear Colleague Letter” in support of our HHT Center of Excellence program in the…
Read MoreUrgent Action Needed: Protect Funding for HHT Research
Dear HHT Community, We need your help right now to protect critical funding for HHT research. As early as this Tuesday, the House will be voting on a Continuing Resolution to fund government programs through the end of Fiscal Year 2025. Unfortunately, the legislation cuts funding for the Department of Defense’s Congressionally Directed Medical…
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