What the HHT?
A blog for the HHT community
Posts by Valaree Machen
30th Anniversary Celebration
Cure HHT’s 30th Anniversary kick-off is a virtual celebration was a huge success, with with presenters reflecting on the tremendous influence of the organization’s vision and future endeavors to find, treat and cure HHT over the past three decades. The event featured a Walk Down Memory Lane with some of our most influential supporters, a…
Read MoreInternational HHT Guidelines: Diagnosis of HHT
International HHT Guidelines Webinar Series Topic: Diagnosis of HHT Thur., June 24th | 7:00 p.m. (ET) Join Dr. Justin McWilliams, Co-Director, UCLA HHT Center of Excellence and Katie Wusik, Genetic Counselor for the Cincinnati Children’s Hospital HHT Center of Excellence as they discuss diagnosing HHT. Dr. McWilliams and Ms. Wusik will walk the audience through…
Read MoreInternational HHT Guidelines: Epistaxis/Nosebleed Management
International HHT Guidelines Webinar Series Topic: Epistaxis/Nosebleed Management Sat., June 12th | 12:00 p.m. (ET) Join Dr. Jay Piccirillo, ENT, Washington University HHT Center of Excellence and Dr. James Gossage, Director, Augusta University HHT Center of Excellence as they discuss the new International HHT Guidelines for Epistaxis (Nosebleed Management). Both doctors are renowned HHT specialist…
Read More12th Annual Stoner Open
12th Annual Stoner Open July 9, 2021 | 1:30 p.m. (EST) Farmstead Golf & Country Club Spend the day on the green to support Cure HHT! Join Steve Stoner and friends at the Farmstead Golf & Country Club for the 12th year in a row to support an important cause. Let’s make this year’s tournament…
Read MoreAnthony Anzell – Why Research is Important
Anthony Anzell, Ph.D, HHT patient and Cure HHT Board Member’s Facebook Live overview of clinical research and why it’s so important for the HHT Community.
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