What the HHT?

A blog for the HHT community

Posts by hht_admin

7th Annual Night of Hope to Benefit Cure HHT

When: Saturday, March 16, 2019 from 5:00-11:00pm EST   Where: Plymouth Manor: Plymouth, MI   Details: Join the Nissan Family for the 7th Annual Night of Hope, an event to raise money and awareness for HHT. There will be games, auctions, dinner, dancing, and more!  To learn more about this special evening and to register as an individual attendee,…

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Washington Post Feature: Zina Martinez Story

The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article >   Cure HHT was instrumental in…

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This Season We’re Thankful for You

Believe it or not, we’ve come a long way in diagnosing and treating HHT. This fall season we are expressing our gratitude to everyone who has helped us so far in our journey to find a cure to HHT.

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Colfax Races HHT Team

May 18-19, 2019 Denver, CO Join our HHT team at Denver’s largest running weekend! You can sign up to participate in a 5K, 10-Mile, Relay, Half Marathon or Marathon. Help us raise awareness and funds for HHT research, and don’t miss out on this incredible experience – sign up today!

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My HHT Tracker iOS App is Ready to Download!

My HHT Tracker: An iOS App To Help You Manage Your HHT Cure HHT is excited to announce that the iOS App My HHT Tracker is ready to download for all North American HHT patients!     My HHT Tracker is a 21st century tool that allows patients to educate themselves about HHT, track health conditions, store health…

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