What the HHT?
A blog for the HHT community
Posts by hht_admin
Washington Post Feature: Zina Martinez Story
The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article > Cure HHT was instrumental in…
Read MoreMy HHT Tracker iOS App is Ready to Download!
My HHT Tracker: An iOS App To Help You Manage Your HHT Cure HHT is excited to announce that the iOS App My HHT Tracker is ready to download for all North American HHT patients! My HHT Tracker is a 21st century tool that allows patients to educate themselves about HHT, track health conditions, store health…
Read MoreHow to Fundraise for Cure HHT on Facebook
This small, but mighty community can help Cure HHT deliver results for new HHT treatments, new HHT Centers of Excellence and new options that can help people manage their HHT much more quickly than ever before. How? By sharing stories about their journey with HHT, advocating for this case and becoming a fundraiser on…
Read MoreChair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a podcast on June 27, 2018 and learn how Dr. Raj Kasthuri talks about Hereditary Hemorrhagic Telangiectasia, also known as HHT, with Dr. Ron Falk. Dr. Kasthuri describes the symptoms, how it can affect internal organs, and…
Read MoreLiving with HHT: Review in Journal of Radiology Nursing
Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from the Journal of Radiology Nursing, written by Jeffrey Pollak, MD and Katharine Henderson, MS, reviewing the published book Sara Palmer, PhD titled Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia. Read Article | Purchase Book
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