Anemia/ Iron Deficiency
Resources addressing the causes, symptoms, and treatment of anemia/iron deficiency.
Related Resources
Brain AVMS – Recent Advances in Imaging and Management
Webinar – 2026In this session Dr. Krings will describe recent advances in imaging, neurointervention and medical management in patients with Brain Arteriovenous Malformations. In particular he will discuss how Vessel Wall Imaging allows us to understand why certai…
More
Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk (Recording)
Webinar – 2026Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this session, you’ll learn: How were the 3…
More
Knowledge is Power: The 5 Biggest Changes in HHT Care (Recording)
Webinar – 2026Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this Cure HHT webinar recording, we walk th…
More
Comprehensive Guide to Managing Your Nosebleeds (Recording)
Webinar – 2026If you live with hereditary hemorrhagic telangiectasia (HHT), you already know nosebleeds (epistaxis) aren’t “just annoying”—they can disrupt daily life, drive anxiety, and in some cases lead to serious complications. In this Cure HHT webinar recordi…
MoreIron Replacement in HHT
Policy Statement – 2025Iron deficiency anemia is common in people with HHT with an estimated prevalence of 50%. Further, a number of people with HHT develop symptomatic iron deficiency without anemia. Iron deficiency is an under recognized and sub-optimally managed complic…
More
A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)
Webinar – 2024Join us to learn about sclerotherapy, an innovative treatment offering hope to HHT patients suffering from chronic nosebleeds. Dr. Jay Piccirillo, ENT at Washington University, explains how this minimally invasive therapy works, its benefits, who qua…
More
United States Map of Nasal Sclerotherapy Providers
Patient Tool, Provider Tool – 2024This Map shows the current US HHT experts that perform nasal sclerotherapy as of November, 2024. This image was created by Dr. Jay Piccirillo at Washington University. Please note that local providers may also offer nasal sclerotherapy.
More
Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded)
Webinar – 2024Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at University of Florida, goes over a variety of ways you can help manage your HHT-related nosebleeding. Treatments available for patients are rapidly evolving. Learn about all t…
More
Anemia, Deficiencia de Hierro y HHT
Español, Fact Sheet – 2024Hoja informativa complementaria a los recursos para pacientes de Mi Checklist Sobre HHT Cuidados, y basada en las actualizaciones de las Segundo HHT Internacional Directrices publicadas en Annals of Internal Medicine en 2020.
More
How to Be an HHT Changemaker Part 1: Drive Research (Recorded)
Webinar – 2024Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Co…
More
NEW Criteria! Groundbreaking Trial for HHT: Learn About Pazopanib (Recorded)
Webinar – 2024Your questions answered about our newest clinical trial with NEW expanded criteria! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is now eligible, what Pazopanib is, and how you can get involved!
More
Caring for HHT Through the Generations (Recorded)
Webinar – 2024Drs. Adrienne Hammill, Center Director at Cincinnati Children’s Hospital and Kevin Whitehead, Center Director at University of Utah. Dr. Hammill guides you through the early stages of life, covering genetic testing, prenatal care, and the significanc…
More
Pazopanib: A Groundbreaking Trial for HHT (Recording)
Webinar – 2023Get your questions answered about our newest clinical trial! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is eligible, what Pazopanib is and how you can get involved!
More
Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods
Video, Webinar – 2023Calling all foodies! Grab your apron and head to the kitchen to join Registered Dietitian Nutritionist Kat Benson for our most sizzling online education opportunity yet, as she leads you through an interactive cooking demonstration! Kat discusses the…
More
Dietary Iron & HHT
Fact Sheet – 2023Iron deficiency is a common and important manifestation of HHT. Lack of iron makes it harder to produce red blood cells (RBCs), has symptoms similar to anemia, and makes anemia more likely to occur with active bleeding as the body will not have the n…
MoreRelated News
Diagonal Therapeutics Announces First Patient Dosed In Phase 1/2 Diamond Clinical Trial Of Diag723 For HHT
Cure HHT is thrilled to share that the first patient has been dosed in Diagonal Therapeutics’ Phase 1/2 DIAMOND clinical trial evaluating DIAG723 for hereditary hemorrhagic telangiectasia (HHT). DIAG7…
Women’s Health & HHT: Across the Lifespan
May 19, 2026
Ask the Nurse: A Conversation on Pediatric HHT
March 12, 2026
Knowledge is Power: The 5 Biggest Changes in HHT Care
December 4, 2025