Cure HHT Canada
Cure HHT Canada is a registered, tax-deductible charitable organization in Canada. The establishment of Cure HHT Canada marks a concentrated effort to expand a…
MoreCaring for HHT Through the Generations (Recorded)
Dr. Adrienne Hammill guides you through the early stages of life, covering genetic testing, prenatal care, and the significance of early screening for pediatric…
MorePazopanib: A Groundbreaking Trial for HHT (Recording)
Get your questions answered about our newest clinical trial! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is eligible, what Pazopanib is and h…
MoreGuías clínicas internacionales HHT (2020)
Publicada por Annals of Internal Medicine en 2020, las “Segundas pautas internacionales para el diagnóstico y tratamiento de la HHT” son un documento completo p…
MoreListas de verificación de atención y síntomas del paciente
Descargue y distribuya “Mis listas de verificación de atención HHT” a los pacientes para que las completen y se las devuelvan, incluidas: atención HHT, diagnóst…
MoreMi CHECKLIST Sobre HHT Cuidados: Embarazo y Parto
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Adolescencia
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Malformaciones Arteriovenosas Pulmonares (MAVP)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Malformaciones Vasculares Hepáticas (MVH)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Sangrado Gastrointestinal
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi Checklist Sobre HHT Cuidados: Malformaciones Vasculares Cerebrales (MVC)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreThe Role of Genetics in HHT (for patients)
For people who suspect that they might have HHT, this brochure provides an overview of the signs, symptoms, and genetics of HHT and outlines the importance of g…
MoreThe Role of Genetics in HHT (for providers)
This brochure gives healthcare providers an overview of the signs, symptoms, and genetics of HHT and outlines the important role that genetic testing plays in t…
MoreAbstracts – 14th HHT International Scientific Conference (2022)
Angiogenesis. This article is open access and free for a certain period of time; otherwise, it is available for purchase directly from the publisher. Click to v…
MoreExecutive Summary – 14th HHT International Scientific Conference (2022)
Angiogenesis. This article is open access and free for a certain period of time; otherwise it is available for purchase directly from the publisher. Click to vi…
MoreHHT Family Ambassadors & Communicating with Family
FB Live Event – Join Sara Palmer, PhD, author of Living with HHT, and Riley Blevins of Cure HHT as they navigate discussing HHT with family members and the impo…
MoreAngel Flight NE
Angel Flight NE is a non-profit organization providing FREE medical air transportation for individuals with limited financial resources, including those sufferi…
MoreUncovering Your Roots: Decoding Genetic Testing
Discover the power of genetic testing as we uncover the roots of HHT! Join us for an enlightening online education opportunity with Theodore Drivas, MD, PhD, Un…
MoreIron and HHT: Boosting Your Health & Energy with Iron-Rich Foods
Calling all foodies! Grab your apron and head to the kitchen to join Registered Dietitian Nutritionist Kat Benson for our most sizzling online education opportu…
MoreDietary Iron & HHT
Iron deficiency is a common and important manifestation of HHT. Lack of iron makes it harder to produce red blood cells (RBCs), has symptoms similar to anemia,…
MoreResearch Roundtable: An Inside Look at Exciting Clinical Trials
Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Fau…
MoreThe Connection Between HHT and PH
Learn more about the connection between HHT and PH, disease management, signs and symptoms and more during this recorded Facebook Live event with Dr. Ali Ataya…
MoreNosebleed Management – Nurse Cards
This card contains helpful tips for nosebleed management in a format that is ideal for providers who may not be familiar with the care required for HHT-related…
MoreBack to School (tips for caregivers of children with HHT)
Facebook Live event featuring Cure HHT Chief Medical Officer, Scott Olitsky, MD, and school nurse, Leslie A. Perry, RN, MS as children gear up and get ready to…
MorePH and HHT: Signs, Symptoms and Disease Management (Recorded)
PHA and Cure HHT – Murali M. Chakinala, M.D. discusses the importance of recognizing the signs and symptoms of Pulmonary Hypertension (PH) and Hereditary Hemorr…
MoreDevelopment and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument
Blood Advances. Authors: Raj S Kasthuri, Shruti Chaturvedi, Sonia Thomas, Nathan Vandergrift, Carla Bann, Nicole Schaefer, Marianne S Clancy, Reed Pyeritz, and…
MoreHeartland Regional Genetics Network
Heartland Regional Genetics Network ofrece materiales gratuitos en español para la comprensión de la genética y las enfermedades raras.
MoreHHT Frontlines – Scientific Newsletter
Spring 2022. Cure HHT’s biannual newsletter that centralizes and summarizes select and important publications about HHT for patients, clinicians, and scientists…
MoreA Comprehensive Guide to Managing Your HHT
We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicia…
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