What the HHT?
A blog for the HHT community
Front Page Announcements
UMH Certified as HHT Center of Excellence
UHealth – University of Miami Health System has been officially certified as an HHT Center of Excellence. This marks another significant step forward in our fight to increase access to specialized care for our community! By earning this designation, UHealth, part of the University of Miami Miller School of Medicine, joins our growing network of more than 30 Centers of Excellence across North America.
Miami is currently accepting new patients and welcomes inquiries from patients across South Florida, the Caribbean and Latin America. The team includes many Spanish-speaking experts!
Read MoreUAB named HHT Center of Excellence
Cure HHT is excited to announce that The University of Alabama at Birmingham (UAB) is now certified as an HHT Center of Excellence — providing expert, comprehensive care for HHT patients. UAB is currently accepting new patients, and welcomes your inquiries!
Under the guidance of co-Directors Drs. Jesse Jones and Theresa Caridi, the specialties that support care through the UAB COE include ENT, cardiology, gastrointestinal/ hepatology, genetics, interventional radiology, neuroradiology, neurosurgery, and pulmonology.
Read MoreHHT Global Awareness Day
June 23rd is HHT Global Awareness Day! While we work to raise awareness all year long, HHT Awareness Month is a time where we ask our community to get especially loud!
Cure HHT is the only patient advocacy organization in the world funding research, awareness and education for HHT patients, their families and the medical/scientific community. Rally your family and friends to join our fight to raise awareness and save lives!
Read MoreUncovering Your Roots: Decoding Genetic Testing (RECORDED)
Discover the power of genetic testing as we uncover the roots of HHT! Join us for an enlightening online education opportunity with Theodore Drivas, MD, PhD, University of Pennsylvania HHT Center of Excellence, and Genetic Counselor, Zahra Girnary, University of North Carolina HHT Center of Excellence, who will guide you through the process of genetic screening, as well as explore the valuable insights that genetic screening can provide for your individual HHT care.
Read MoreRoot for Awareness – Crowdfunding Campaign
This year, in place of our virtual walk – Strides for Strength – we thought we’d change things up and branch out (pun intended) as we spotlight the importance of understanding your family’s HHT roots. Your stories of both struggle and triumph help people take notice! Fighting for awareness and making HHT more recognizable, however, does come at a cost. But hey, nobody said we couldn’t have a little fun while we do it! Rally your family and friends to help share your story, raise money for an amazing cause, and compete to WIN AMAZING PRIZES along the way!
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