The 1st Cure HHT Research Network International Convening is just around the corner and taking place in Boston from March 18-20! Our HHT patient advocates, leading physicians and scientists from around the globe have our community’s survey data in hand. Following virtual workshop sessions, this amazing group will be working side-by-side to develop a research roadmap that prioritizes HHT research topic areas, based on the most important needs of our patients, for the next 3-5 years!
Earlier this year, we surveyed over 1,200 patients and nearly 150 scientists and clinicians. Ahead of CHRN, you can review the survey results. We’re thankful to all those who participated in these important surveys! The patient voice is the catalyst that drives change, and we’re excited to harness the power of this network to encourage greater collaboration between patients, scientists and clinicians.
Learn more about the CHRN and be sure to stay tuned for highlights throughout the event and after! Our patients are an incredibly powerful voice in driving change – this network helps ensure the patient voice is at the center of our work to better find, treat, and cure HHT.