What the HHT?
A blog for the HHT community
Summer is kicked off with a bang for the Cure HHT family with HHT month and the various activities that take place during the month of June. However, while engaging in various outdoor fundraising activities that benefit the cause and enjoying the long and hazy, hot days of the season, there are particular precautions that…Read More
Since marrying into an HHT family, I have felt a need to do more to advocate for my family members, raise awareness, and help in any way I can. I know how precious both money and blood can be to this community, but we are not always in a financial position to give to the…Read More
As a child, I LOVED going to the dentist. I hope by starting Eleanor out young, I can instill an excitement about dental health in her to avoid any fears/anxieties about the dentist in the future. Going to the dentist with HHT can add a bit of complexity. If you have or don’t know if you…Read More
This month, I’m spreading positivity! Focusing on me, and you, and how we should be taking better care of our overall well-being. Remember, you may have HHT, but HHT does not have you – it does not define you and all you aspire to be! I’ll be the first to admit some days are easier…Read More
Does anyone else teeter between these two states of mind? My husband and I often discuss which is better – As the person with HHT, he would rather be more on the blissfully ignorant side. His symptoms are not very severe (no AVMs we know of, but a lot of nosebleeds), and his family rarely discusses their medical issues, if…Read More