What the HHT?

A blog for the HHT community

Part III: No Nosebleeds, No Problem?

If you meet with a geneticist, they ask you about your family.  My father had a brother and a sister, but my mother was one of thirteen children. Nine of them were sisters who lived to adulthood. The sisters and my mother were all very close, despite the geographical distance between my mother and the…

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Part II: Floating Down the River of De-Nial

You’ll know from Part I that I was in denial. I decided not to accept Dr. Old School’s opinion that I had HHT and would try to figure out the reason for my nosebleeds on my own.    I reasoned that if I knew what triggered the nosebleeds, I could change whatever behavior was causing them,…

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Part I: Dr. Old School, Diagnosis and Denial

Maybe this will sound familiar to you. Pesky nosebleeds that, over time, become prevalent, preoccupying and pernicious. I have suffered from nosebleeds since I was a child. Other than that, I had been in excellent health, so my doctor never thought much of them. By my late thirties, the nosebleeds had gotten so bad that…

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Sharing to make a difference

Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…

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