What the HHT?

A blog for the HHT community

Part II: Floating Down the River of De-Nial

You’ll know from Part I that I was in denial. I decided not to accept Dr. Old School’s opinion that I had HHT and would try to figure out the reason for my nosebleeds on my own.    I reasoned that if I knew what triggered the nosebleeds, I could change whatever behavior was causing them,…

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Part I: Dr. Old School, Diagnosis and Denial

Maybe this will sound familiar to you. Pesky nosebleeds that, over time, become prevalent, preoccupying and pernicious. I have suffered from nosebleeds since I was a child. Other than that, I had been in excellent health, so my doctor never thought much of them. By my late thirties, the nosebleeds had gotten so bad that…

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Sharing to make a difference

Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…

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