What the HHT?

A blog for the HHT community

Posts by Nolie Krock

Cure HHT Research Network: Clinician and Scientist Surveys

The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020, the Cure HHT Research Network (CHRN) aims to bring safe, effective treatments to patients more quickly by prioritizing research based on patient needs, broadening and…

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Rainbow Rehab’s Rainbow Visions Magazine: Coming Full Circle

Much of HHT education comes from the deeply personal stories of those who are living with the disorder. This incredible article by recreational therapist Lindsay Vos in Rainbow Rehab’s Rainbow Visions magazine is an intimate and honest portrayal of coming to terms with HHT. “Coming Full Circle” follows Lindsay’s journey through denial, HHT diagnosis, removal…

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HHT Recognized in WebMD Article!

Girl Bloody Nose Tissue

WebMD has highlighted HHT in an article titled “What Does Your Nose Say About Your Health?“. This recognition by one of the top healthcare websites shows the effectiveness of the our community’s efforts to spread awareness and educate about HHT. With your help we continue to show the world that HHT is more than just…

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