Urgent Action Needed: Protect Funding for HHT Research
Dear HHT Community,
We need your help right now to protect critical funding for HHT research.
As early as this Tuesday, the House will be voting on a Continuing Resolution to fund government programs through the end of Fiscal Year 2025. Unfortunately, the legislation cuts funding for the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) from $1.509 billion to $650 million – a 57 percent reduction!
Cuts of this magnitude would significantly disrupt and have devastating consequences for ongoing research for HHT – including impacting our Pazopanib Clinical trial.
We need to act NOW to help prevent this.
We are calling on as many community members as possible to reach out to your local Representatives and Senators asking them to vote NO and instead approve a full-year FY25 Defense Appropriations Act that fully funds CDMRP.
How you can help:
- Call or email your local Representatives and Senators today (find them here).
- Below is template language you can use in your communications:
[Subject: Protect Funding for HHT Research – Vote NO on Continuing Resolution Without CDMRP Protections]
Dear [Representative/Senator’s Name],
I am writing as a concerned constituent and advocate for those living with Hereditary Hemorrhagic Telangiectasia (HHT). I urge you to protect funding for the Congressionally Directed Medical Research Program (CDMRP), which is critical for ongoing research that impacts so many.
I ask that you vote NO on the Continuing Resolution legislation and work with Congress to produce a final FY25 Defense Appropriations Act that fully funds the CDMRP.
More than 70,000 Americans living with HHT depend on the progress this funding makes possible.
Thank you for your attention to this critical matter. The lives of those impacted by HHT and other rare diseases depend on your action.
Sincerely,
[Your Name]
[Your Address]
[Your Contact Information]
By sending these emails and making these calls, you are advocating for life-changing research that impacts millions, not just those with HHT, but the broader medical community as well. Thank you for standing up for HHT research and the future of those who depend on it!
Still Time to Participate In Virtual HHT Capitol Hill Week
Cure HHT has extended its window for our virtual advocacy week, as we’re urging as many community members as possible to schedule critical virtual meetings with your elected officials from March 10-21 to help protect funding for our center of excellence program.
Declare your interest here and we will send you more information, tips, training and talking points.