What the HHT?
A blog for the HHT community
March 14, 2019 1:00pm EST North American Vascular Biology Organization (NAVBO) is highlighting HHT research in its webinar series with Stryder Meadows, Ph.D., Assistant Professor, Stepping Stone Foundation Early Career Professor in the Department of Cell and Molecular Biology at Tulane University presenting “Angiopoietin-2 inhibition rescues arteriovenous malformation in a SMAD4 HHT mouse model”. Dr. Meadows’ presentation…Read More
The 12th edition of Rare Disease Day will focus on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day. Rare Disease Day 2019 is an opportunity to be part of…Read More
NIH Rare Disease Twitter Chat Prior to Rare Disease Day, on Feb. 22, 2019, NIH will host a Twitter chat on rare diseases from 1-2 p.m. ET. The chat will feature NIH Director Francis S. Collins, M.D., Ph.D., NCATS Director Christopher P. Austin, M.D., and CC CEO James K. Gilman, M.D., as well as representatives…Read More
Saturday, February 23, 2019 The Health Museum of Houston 1515 Hermann Drive Houston, TX 77004 9:00am – 1:00pm (CST) Thursday, February 28, 2019 Texas Children’s Hospital Auxillary Bridge 6621 Fannin Street Houston, TX 77030 11:30am – 1:30pm (CST) The 4th annual Rare Disease Day event will feature over 35 rare disease organizations hosting…Read More
Introduction: With the prevalence of social media, it is almost impossible not to be connected these days. One of the most popular ways to connect with others is through community support groups, like the ones for HHT on social media sites. Most of the time, I think these groups are what our HHT community…Read More