What the HHT?

A blog for the HHT community

Posts Tagged ‘hht awareness’

Sharing to make a difference

Recently I had an amazing opportunity to share my HHT story with a group of researchers from Recursion Pharmaceuticals as well as local medical professionals in the Salt Lake city area. It all started by saying ‘Yes’ to a Facebook invitation. I saw on Facebook that Cure HHT was looking for a patient to volunteer…

Read More

HHT One-liners

Annyeonghaseyo! Hello, from South Korea! I haven’t written a blog post in a few months because our lives have been uprooted by the Army once again. My husband graduated Captain’s Career Course in May and our whole family moved from Virginia to South Korea in June! We spent time getting both our children screened for…

Read More

Bay to Breakers HHT Team

Sunday, May 19, 2019 San Francisco, CA Join our HHT team and walk or run the 12K course in one of the most historic (and hysterical!) races in the world. You can participate as an individual or as part of a team. For more information, visit our team’s website today!

Read More