Invitation: 2025 HHT Patient and Physician National Conference
I’m so excited to introduce myself to this amazing community. My name is Hellen Tecle, and I stepped into the role of Manager of Community Events and Education here at Cure HHT just a little over four months ago. In that short time, I’ve been amazed by the strength of this mighty organization, and even more astonished by the resilience, courage, and warmth of the HHT community.
Every day, I’m getting a crash course in just how complex and dynamic HHT is—not only as a disease, but also in terms of the medical, research, and care landscape that surrounds it. There are so many moving pieces, from groundbreaking research to rapidly evolving clinical care to the personal journeys of patients and families. It’s become so clear in my short time here: When it comes to HHT, knowledge is power.
It’s with that in mind that I’d love to personally invite all of you to join us for our 2025 National HHT Patient & Physician Conference. This special gathering will take place just outside Dallas, Texas on November 8-9, and it promises to be an unforgettable experience… filled with warmth, hope, empowerment and more!
Whether you’ve been newly diagnosed, or your family has been navigating HHT for generations, this conference is for you. Maybe you’ve never attended before, or perhaps it’s been a few years since you last came—either way, I want to encourage you to take this opportunity to take charge of your care.
The program will feature some of the world’s leading HHT experts who are at the forefront of research, treatment, and patient care. It’s rare to have such a wide array of specialists in one place, ready to share their knowledge and answer questions directly. Since we launched registration, our inbox is filled with emails from past conference attendees saying how the information they gained at these events made a real and life-changing difference in how they manage their disease.
But equally important is the sense of community you’ll feel. There is something powerful about being in a room filled with people who truly understand the challenges and triumphs of living with HHT. Families share their stories, patients encourage one another, and connections are made that last long after the conference ends. It’s a reminder that none of us are walking this path alone.
Our conferences are also designed to be uplifting and practical. We’ll cover a wide range of topics, from medical breakthroughs to everyday strategies for living well with HHT. You’ll gain the knowledge and tools you need to advocate for your health, support your loved ones, and feel empowered in your journey.
When we come together, we create something extraordinary: a community that carries both the science of tomorrow and the compassion of today. I can say with confidence that this conference will leave you inspired, informed, and connected in ways that are deeply meaningful.
I truly hope to see you in Dallas in November. Let’s join hands, share stories, and fuel the fight for better treatments and, one day, a cure.
Hellen Tecle
Manager,
Community Events and Education
This letter is featured within the 2025 Fall Newsletter, now available digitally. Find important resources, announcements, programs, stories from staff, community updates, and more. Download your copy today.