What the HHT?
A blog for the HHT community
Cure HHT Announcements
Register Now! Patient & Physician Conference
Patient & Physician Conference Virtual | April 29 – May 7, 2022 The Cure HHT Academy is pleased to present its 1st Virtual Patient/Physician Conference this spring. The conference is a nine-day learning and information gathering extravaganza featuring: Patient and physician focused tracks – select any or all of the nine tracks and curate a…
Read More14th HHT Scientific Conference: Abstract Submission Deadline Extended!
The HHT International Scientific Conference is hosted and sponsored by Cure HHT. The Conference Organizing Committee invites authors to submit abstracts to be considered for inclusion in the 14th HHT International Scientific Conference for either oral or poster presentations. The abstract submission deadline has been extended to June 15, 2022. While Cure HHT will continue to…
Read MoreFederal Funding Secured for U.S. Centers of Excellence
A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that I share this truly momentous news with you: Our HHT Center of Excellence (CoE) funding request made it into the final spending bill, and that bill was signed into law by President Biden just a few weeks ago. At long…
Read MoreCure HHT Scientific Newsletter
Twice a year, Cure HHT collaborates with its global research and medical advisory board to publish HHT Frontlines – a scientific newsletter aimed at centralizing, summarizing, and sharing the most relevant HHT studies with the scientific and medical community. Our latest edition dropped earlier this year, and while the newsletter focuses on topics most relevant…
Read MoreCHRN: Creating a Roadmap for the Future
A Message from Marianne Clancy, Cure HHT Executive Director Transformational. That’s the word that keeps coming to mind since returning from Boston, the site of the 1st Cure HHT Research Network (CHRN) International Convening. I have been part of this foundation for nearly 30 years, and I can honestly say that this stands out as…
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